Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-23-2012, 09:44 PM #1
Sharianne615 Sharianne615 is offline
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Join Date: May 2012
Location: Easton, Md 21601
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10 yr Member
Sharianne615 Sharianne615 is offline
New Member
 
Join Date: May 2012
Location: Easton, Md 21601
Posts: 1
10 yr Member
Confused Will it get better???

I am a wife of a husband that has RSD, Im not really even sure where to start. My husband got hurt of the job September 24, 2010, he is/was a frieght handler for Fedex, The night he came home, I saw his ankle, and I knew right then and there something was really wrong, his manger did kno what happened but my husband is hard headed and didnt report it, and told his boss that he would be ok,

well after i saw him i told him that he needed to go to the hospital, so 4 hours later he decided he was goin to go, he came back home 3 hours later and said that he had a severe sprain, well i knew the it was more serious then that cuz i am a medical assistant, so he followed up with his orthopeadic dr and he put him in a boot and scheduled him for a MRI, so that was done and he went to the follow up with the MRI and his dr said WOW, you really did a number here, so then that dr refered him to another dr in the office that specialized more with ankles, so by the time he got to see that dr it had been a few months and just to remind u, my husband has been in his boot, so this new dr looked at his MRI and said that he has torn ligaments, tendons and achilles tendon,

so now he is put into therapy and given a corset brace, and he is told to start walking on it, his foot is still swollen and he can not bend his toes, move his foot left to right or up and down, so they started him on some meds, and made another follow up appt, so then after a couple follow ups, my husband keeps describing pain and well the dr said that the pain he is describing has nothing to do with his ankle, and the dr mentioned to me RSD and not to tell my husband cuz then it would be in his head and then he would "have" that, but as i read more and more, i started to relize that it is what he has, so then the dr finally diagnosed him with RSD.

He also refered him to a pain managment dr for the pain. This is not like the normal pain managment dr that has u come in ok heres ur meds on ur way, this dr actually trys to fix you and help you and doesnt want u to stay on meds. Ok well he started off with dialudid 4mg to get him under control with his pain and then dropped him to a 2mg, they also did spinal injections, which helped a little, then they did a spinal cord stimulator, which took a good amount of the pain away.

So now they have taken him off dialudid and put him on percocet 7.5 and my husband says that actually helps him. Now also within this time period, he has started to have these episodes i call them where he bobs his head up and down, stops breathing and then when it is done jus goes back to talking like it never happened, he has gotten worse with the episodes, and has gone to a neurologist, has done sleep studies, they did a video study on him EEG and cant figure out anything,, he is now on depacope i think its called which is for siezers, even tho the dr said he isnt having them but they are goin to treat him like he is. now these past couple of months, he has been sleeping alot and not wanting to do anything, does it get better????
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