Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-30-2015, 01:32 PM #41
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Default RSD Calmare scrambler therapy

The experts should let you know its meant to be used prior to it spreading to other locations than the original injury location. You go above the injured area on a meaty/fatty (Im very thin at the foot/ankle) about 3/4 fingers above injury & you go daily until pain is decreased or gone. I hv RSD in my left ankle that shoots up my leg & makes my entire body jerk when it attacks. After 10 consecutive (excluding weekends) treatments, my pain level has decreased significantly & sharp attacks which could last for dayshv stopped. You hv to be committed & hv patience but I would advise everyone with localized RSD to try this. I was also told by my physicians that it doesnt work on fibromyalgia
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Old 07-30-2015, 07:44 PM #42
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Hello Itworks,

I am making the assumption your screen name is in reference to the Calmare? Was this your intention? I don't mean to offend but I am sure you can understand that we sometimes get people marketing a product instead of making a legitimate post And single initial posts of a hallelujah nature tend to raise suspicion.

This is a great place for sharing and support. The members here really care about one another. I see this is your first post so welcome. I suggest you start a new thread to say hello and introduce yourself. There is also an "Our stories" sticky post at the top of the RSD page.

Be well,
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Old 08-20-2015, 07:04 AM #43
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I've just checked the patent mentioned on page 2 if you scroll down to background to the invention para 2 it states it is a tens machine
http://patft.uspto.gov/netacgi/nph-P...S=PN/8,380,317
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Old 08-20-2015, 07:40 AM #44
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Hi Kevscar,

I hope you are doing alright.

I agree that it shares features with a TENS. It stimulates the nerve from outside the body. I think maybe the amplitude technical specs are different in the way that Frequency Specific Microcurrent is similar but different from TENS.

I wish that I had more faith in our patent office and FDA categories. New medical devices here tend to piggyback on a previously approved category to get out of lengthy clinical safety trials. So you can end up with different devices in the same category.

I found this out the hard way when early on in my journey a podiatrist recommended EWST, extracorporeal shock wave treament. I tried it once and it was excruciating. It blasts shock waves through the tissue and is like lithotripsy on a small local area. The device by Dynatron, is approved under the FDA as a "massager". Crazy!

I think we have to be careful of new gizmo treatments in general and have a high degree of suspicion about them. I got into trouble with cold laser also. Things that don't aggravate others can aggravate our already sensitive nerves and should always be approached with caution.
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Old 08-20-2015, 04:31 PM #45
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The WC doctor I saw recently told me that two RSD patients paid out of pocket for "scrambler" therapy and only one had success.
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Old 08-22-2015, 02:23 AM #46
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I agree that it shares features with a TENS. It stimulates the nerve from outside the body. I think maybe the amplitude technical specs are different in the way that Frequency Specific Microcurrent is similar but different from



When I went for my 1st session of Scrambler that is exactly what Dr. d'Amato told me about how they obtained a patent.

I had some moderate success with Scrambler. It wasn't a cure-all treatment for me, but it did significantly reduce my pain and helped stop a mirror spread.

I am a worker's comp patient and was the 1st person to have Scrambler covered by my insurance company. It was hard work to get it covered, but worth it. They even paid for me to stay in a hotel during the treatment since it was out of state. I hope I helped pave the way for other WC people to get the treatment.
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Old 09-19-2015, 04:18 PM #47
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SloRian,
I live in Santa Fe, NM and have new onset RSD after a minor ankle fracture 8 weeks ago. I have a long complicated history of neuroimmune diseases and need to travel by RV so I can control my diet and other things or the trip will be counterproductive. It would mean a lot to me to know who you had a good experience with in Arizona, or even Utah. I'm so happy for you that you found something that helps your daughter. I have a sick daughter too and nothing makes me happier than her improvement.
Warmly,
Jamie

P.S. I just joined this forum and it won't let me post my email address and I don't see how to send you a private message. Can you figure out how to contact me privately? Or reply with the town. Is it in Mesa?
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Old 12-25-2017, 10:58 PM #48
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Default Calmare Location in Phoenix

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Originally Posted by SloRian View Post
We went through that this last time my daughter came out of remission. We tried a provider closer to home, but you could tell that they just weren't as experienced, plus for some reason they changed the pads to a normal TENS pad, and although she "zeroed out" during treatment, the pain came back about 6 hours later, like you, and after 4 treatments, the pain came back completely over the weekend. The next week, we went back to the provider that we went to last time, and it worked really well, and she's back in remission.

I'll give some more details in my next post, but I wanted to reply specifically to your post since we went through what you were asking about.

Can you say which clinic you went to in Phoenix that gave your daughter the good result? I want to try Calmare and don't want to go anywhere that might not be beneficial. Thank you so much
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Old 05-17-2018, 02:28 PM #49
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For those who have responded well to Calmare therapy, does the redness & swelling decrease while in remission? Also did the muscle spasms stop?

Trying to get a better idea of what remission with calmare means.

Thank you!
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Old 09-18-2021, 10:11 AM #50
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I'm in AZ and would love to know which clinic you had better success with so I don't waste my energies. Thank you.
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