Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-31-2012, 07:35 PM #1
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Default aquatherapy??

so I went to my first session today with aqua therapy(30) min. my first sensation before entering was of course fear, will it be too cold. who knew it was that warm. so i placed one foot in just to pull it straight out again. then i slowly entered the pool after adjusting . then pow!!! like little tiny hot needles hitting me at 100 mph. I stuck with it as movement was easier so my exercises were better. but I never adjusted to the tiny hot pinpricks. then I started to get out and boom all my weight fell on my legs. then the cold a.c. I am not going to stop as this was only first attempt. and I NEED to lose weight and I am aloud to be in pool as long as i wish. but this is going to take more time than I thought. plus I already paid for the month(LOL) anyone have their own tales that might help me push through this??? all stories welcome
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Old 05-31-2012, 09:08 PM #2
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I feel LESS sensation in warm water. RSD is complicated (understatement...) so you'll just have to decide if you can handle it. In theory, I guess it could help you with desensitization. I'd rather calm things down, personally. You might be able to get a refund if you explain the issue. Have you tried an Epsom salt bath? It changes the texture of the water, makes you more bouyant, and the magnesium is beneficial.

Usually pools will let you try out a session before committing for any others considering aquatherapy.
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Old 05-31-2012, 09:24 PM #3
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I keep seeing the epsom salt idea here but i have only stand up stalls and my house isn't big enough to change them. re the pool. I do not give in that easily Im stubborn that way i need to try giving this a chance. Im really just trying to see how this has effected others and how they coped. It might not be for me (that will suck) but for zoo many reasons(100 lbs of reasons) I need to try again
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Old 05-31-2012, 09:53 PM #4
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Quote:
Originally Posted by painman2009 View Post
I keep seeing the epsom salt idea here but i have only stand up stalls and my house isn't big enough to change them. re the pool. I do not give in that easily Im stubborn that way i need to try giving this a chance. Im really just trying to see how this has effected others and how they coped. It might not be for me (that will suck) but for zoo many reasons(100 lbs of reasons) I need to try again
I am doing aquatherapy. I'm relatively new to the disease. I started aquatherapy with a PT on a treadmill in about 4 ft. of water. The sessions were 2Xs/wk and the time in the water was about 15 min. I found I needed water shoes because the current on my foot was too painful (site of original injury). But then the PT's aquatherapy motherboard fried and the department is waiting on parts.

I didn't want to interupt my aquathery routine so I started my own aquatherapy at the local Y. The water temp is about 84 degrees. The advantage I found with the Y is that I just float or slowly tread water without any pressure on my foot. I tread the water in an upright position and just move my legs as if I'm riding a bicycle but without the pressure. The way I look at it is that my body is feeling comfortable sensation all over all at once so hopefully (???) I'll be able to reprogram my brain.

I love being in the water. What I have to be careful with is that I don't want to get out. I think I spend too much time in the water (over 1 hr.). If I were still working with my PT, he would make sure I didn't overdo it. I pay for it in that I get very fatiqued and, later that day, my right leg gets much colder to touch. I don't know if that's related to spending too much time in the pool or just part of the disease.

I do believe the aquatherapy is helping the mobility of my right ankle and foot. I'm finding more flexibility in both.

That's been my recent experience with aquatherapy. If you decide to stick with it, just be careful not to overdo it.

Best wishes.
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Old 06-01-2012, 06:39 AM #5
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I did aquatherapy fairly early on in the condition...about 5-6 months in. We started with 2 one-hour sessions in the water a week and one non-water session a week as well. Gradually we decreased that from 1 water session and 2 non-water sessions until I was out of the pool completely.

I didn't like the pool but I think it WAS beneficial...especially in terms of getting the function back at that time. We did a lot of the same exercises in the water that we did out of the water (toe/heel raises, walking, drawing the alphabet with my foot, squats, jumping jacks, etc). The focus was on getting the movements right while subjecting my ankle to less weight.

The main reason I didn't like the pool was that I experienced a lot of pain getting OUT of the pool. That cool air hitting my ankle was INTENSE pain. But they would walk me over to the regular PT area and we would do stim with heat for 15 minutes and then I would leave. TENS helps me...but their big stim machine with the heat there actually brought my pain levels down to a 3 after PT and the relief usually lasted for about an hour. So that horrible pain getting out of the water never lasted very long...just the amount of time it took me to get dressed and walk over to the other area. The relief from the stim and heat allowed me to drive home and rest up in relative comfort (compared to my regular pain levels which were otherwise never lower than a 5/6 at the time).

The only pool exercise that ever did me in was when she had me use a kick board and try to swim. I was actually shocked at how painful that was...the water movements against my ankle when I tried to kick with it. I actually cried because it was so bad. Totally caught me off guard because this was a month or so into the water therapy and nothing else had ever increased my pain like that in the water. Needless to say, we dropped that exercise and did something else.
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Old 06-01-2012, 11:54 PM #6
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I see already that the current is a bad thing for me to feel and fast movement is equally painful. the pool actually localized my RSD zones. and still are burning. I hope this goes down. I am hopeful that the water therapy will at least help me lose weight there for lowering the pressure on my legs.
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