[joker4530]

hi im new to this site.i didnt know a support groups were there.I,ve had rsd for 3 an a half yrs.I got it after a work related injury.Its w/c.I got a pretty good pain dr.He has me on oxycotin 30 an norco 10 for the pain.so most of the time the pain is managable.I dont like the flare ups wich im getting over 1 rite now.THe pain got so bad I almost went to hospital.I red some threds an can't believe some of the pain meds some of these drs. put u guys on.I would deffinitly would find a different dr.im looking for a dr. in michigan.It sucks being in pain 24/7

[catra121]

Welcome! I am sorry to hear all that you are going through. I don't think you will get any arguments from anyone here about how being in pain 24/7 sucks big time. This really is a wonderful group with lots of people who all have different (and often similar) experiences. I can't tell you how much finding this site has helped me these past couple years. I will have had RSD 3 years in July.

Do you have a treatment plan to help you when you go into a pain flare? I know some members here have meds that they take only when they go into a flare to help get the pain down. I don't take anything for the pain...but I do use lidoderm patches for flare. I also have a set of things that I do when I experience a flare to help get the pain under control as quickly as possible. This involves hot bath with epsom salts, ultrasound treamtents, lidoderm patches, PT exercises, and heating patches. Many of those things are part of my regular routine as well but the efforts are amped up when I'm in flare mode.

It's important to remember that every person responds to different things when it comes to RSD. For example, narcotic pain meds had ZERO affect on my pain levels but I have had a good response to treatment with TENS, ultrasound, and tDCS to help with the pain. I have learned a lot of great tips on here from people that I never would have learned from the many doctors I have seen until I have gotten to the point now where I am very happy with my treatment plan. It takes a lot of trial and error to find what works best...but it's well worth the effort.

I hope you get some relief soon and if you are looking for a new doctor that you find a good one who really wants to help you. Take care and good luck. Please feel free to ask questions here or even just to vent. We all know what it is like to live with this monster every day and we're here to support one another.

[alt1268]

I have to agree with Catra in that everyone is different. I am on patchs now after needing way over the limit of pills. I also find that when the pain becomes to great sometimes taking a muscle relaxor and soaking my foot helps. It is all trial and error. One of the things that doesn't help is stress.
Welcome to the group!