Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-06-2012, 09:31 PM #11
painman2009 painman2009 is offline
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Quote:
Originally Posted by Fattieratties View Post
My dr. put me on it a few weeks ago but recently wined me of our cause we noticed a large increase in swelling in my left foot/ankle which is the area of my rsd. she said it was a rare side effect.go figure I would be one of the few but since then the swelling has decreased so I would say its worth a try. I've tried several things and I'm sure I'll keep trying things til I find something that works. Its th nature of our rsd I guess. No two people are the same. Good luck to you. I hope you find relief.
thats funny my spine dr put me on and said that it doesn't cause the issue I complained about..( no memory, massive swelling, Inability to keep food down, increase in urination,and sleepy all the time ) but my Pain management dr said yeah all are a common issue they see with neurontin and they took me off.(by end of week I was more coherent, my swelling disappeared in belly hands and left leg. and i wasn't sleepy all the time) I guess its who you speak with. during my research of it as well I found that the makers of neurontin were sued by the govt for saying it helped with pain, as it had FDA approval only for seizures... as far as how it works.. I've seen its like RSD it works different for each person.
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terralyn (06-07-2012)
Old 06-07-2012, 11:34 PM #12
Imahotep Imahotep is offline
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Gabapentin is great for me. I started on a low dose and continued to increase it. Sleepiness was terrible at first but went away after just a couple weeks.

It interferes with my ability to make connections but I don't notice this side effect until I discontiue it and start seeing the connections again.
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terralyn (06-08-2012)
Old 06-19-2012, 03:18 AM #13
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4 and half months into diagnosis..and tramadol given only..dr says pain mangment needs to be talked through with rhumatologist..and i dont see her for another month..meanwhile im looseing the battle day by day with this ..in the other ankle now..very scared..and am hearing neurontin/gaba works..for other.. not sure if this is in high doses or anything..*moderator edit*.lol dont want to be taking rat poison..hear these stories..but dont want to wait for the health professionals i have already had a couple of incidences where substantial mistakes are being made to my detriment..like i say very scarey..help me take control..6 months since the broken fibula and alone with a daughter of 15, house taken away cos unable to work..cant pay mortgage or bill..and cant drive car so gave to son..getting round house on a office chair..moan moan moan i know..goto get my head around this..thankyou for just letting me do this..

Last edited by Chemar; 06-19-2012 at 06:04 AM. Reason: It is illegal and very dangerous to attempt to buy prescription meds online
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Old 06-19-2012, 03:17 PM #14
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If your pain is out of control, please call the dr. There are numerous prescriptions out there for nerve pain, chronic pain, etc. Most doses of Neurontin are started low and increased over a period of time to allow the body time to adjust to it.

In the mean time, try soaking in epsom salts. This sometimes can give you a little relief.
God bless!

Quote:
Originally Posted by bevikins View Post
4 and half months into diagnosis..and tramadol given only..dr says pain mangment needs to be talked through with rhumatologist..and i dont see her for another month..meanwhile im looseing the battle day by day with this ..in the other ankle now..very scared..and am hearing neurontin/gaba works..for other.. not sure if this is in high doses or anything..*moderator edit*.lol dont want to be taking rat poison..hear these stories..but dont want to wait for the health professionals i have already had a couple of incidences where substantial mistakes are being made to my detriment..like i say very scarey..help me take control..6 months since the broken fibula and alone with a daughter of 15, house taken away cos unable to work..cant pay mortgage or bill..and cant drive car so gave to son..getting round house on a office chair..moan moan moan i know..goto get my head around this..thankyou for just letting me do this..
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GOD help me be faithful in the midst of my suffering. Alt1268
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