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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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I would like to ask all of you how you choose your doctors and do you have choices where you live?
In my area, there are few Pain Management Docs and a new patient may have to wait 3-5 months to get an appointment ! I have a laminectomy type SCS, and simply MUST remain under PM care. I recieved a call from a frantic man yesterday (I am on the RSDSA website for support ) who could not reach anyone close to him to talk to. He has been suffering for over 5 years and was told yesterday that he must have RSD. His story was so much the same as mine- except that it only took me 1 year to get a dx. His is however a workers comp case and he has been getting shots in his affected limbs as I did . This was so excruciating that I can not even think about it-Not to mention the use of ice!!! The next treatment that they want to do is some kind of block in his affected foot. I begged him to please not have anymore needles stuck into his affected limbs. This leads up to my main question. He stated that he was afraid to refuse treatment because of the workers comp suit. So- How do we choose doctors and do you have a real choice where you live? Before I started this thread, I went to RSDSA.org. to see if there was any help there. Unfortunately , there was only a statement that they cannot endorse any Docs,etc. What can we do? Any feedback will be appreciated-Fondly-Carol |
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