Hello everyone, My name is Dana, I am 25 years old and live in Dallas, TX. I just got diagnosed with CRPS yesterday. I dont know what to do...

hi dana.

i'm sorry that you had the nedd to find us. but glad that we are here for you. the rsd forum here is very informative and supportive.

i'm in texas too. just on the other side of dfw airport. it's snowing here!

Hi Dana,

So very sorry to hear about your diagnosis, would you like to tell us what they've said so far? We have several people here with a recent RSD diagnosis, so you're in good company.

I know we'll be happy to answer any questions if we can - I'm sure you're full of them, of course. I'd never heard of RSD/CRPS till I got it...I have it in my left wrist and hand, it came on after I broke my arm in a stupid fall - just slipped on wet greenery, chasing the dog home after a typhoon....kerbam!

Where is it affecting you and how did it begin? Perhaps some others can help too - but in the meantime my best advice would be to read through the back forum pages - there's not much we haven't discussed on here Also, look at the links sticky post, it has numerous URLs for sites to help you learn more about it.

Don't get too depressed, you might be one of the lucky ones - sometimes if you get an early diagnosis and start treatment right away it can be halted.

Take care, good to see you here anyway,
all the best!

I have it in my right leg. I got it after surgery to repair my acl in my knee. I have had 9 surgeries alone on my right knee. My doctor is going to start the series of nerve blocks on Thursday, if that doesn't work she is going to burn my nerve endings. If that doesn't work she will test me for a nuerostimulator from what I understood. Does anyone here have a nuerostimulator?

Dana,

The best thing for you to do is to find a good Pain Managment DR. even better a good teaching hospital go to there pain Managment dept. I know TX has some great Universities. WOrk on the phone so not to get to frustrated and tired. Stress is one of the biggest triggers with RSD. I have been diagnosed for 3 1/2 years and see a very good NYC DR. It has taken some time but after time I can truly say I feel good and have good and bad days, take very few meds. Currently went back to school because I had to change careers due to my inquiry and actually will be looking for a job come Sept 07. What a difference from 3 1/2 years ago. Hope this helps. Good luck.

Ann

Dana,

When I posted to you before I might have mislead you. Yes, I am better now but it has been 4 years of blocks, ketamine treatments, surgeries to fix the inquiry etc. But keep positive and before you have anything done ask "HOW MANY TIMES HAVE YOU DONE THIS" AND "CAN I SPEAK TO A PATIENT WHO YOU HAVE TREATED". I have spoken to patients for my Dr. about my experience and treatments, only to help the patient so I know DR's do it.

Good luck,

Ann