NeuroTalk Support Groups - Diagnosed with RSD today

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Diagnosed with RSD today (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/171405-diagnosed-rsd.html)

Very sorry to hear abt another person being diagnosed

Quote:

Originally Posted by McGilicuti (Post 888121)

After 17 years and many doctors, I finally got diagnosed today. Mixed feelings because I don't want to have RSD but glaad I know what's wrong with me.

17 years had to be so very hard for you to go through the day to day things of life while not knowing what the heck was going on with your own body. I am also so very sorry to hear that you are now diagnosed with this thing. The numbers are just getting bigger. However, maybe that's what is needed to get the research done to find a remission solution. Please take care and know that you are in many ppls prayers for a healthier tomorrow. Stay strong.

Sorry to hear that you've joined our 'club' McG :hug:

Thanks everyone for your support. Family doctor put me on a pain patch on Friday. Had to remove it yesterday. I felt sick, dizzy and like I was going to passout. Never again. Ugh

Quote:

Originally Posted by McGilicuti (Post 888406)

Thanks. I'm so glad I found this support group. I've been googling and reading everyone's posts on here. Dr. wants me to do ketamine IV treatments. My insurance doesn't cover them and I have no money to pay for them. Very depressed so Dr. gave me a script for Cymbalta. Got it filled and starting it tonight. Pain is so bad at night. My swollen feet are elevated. Dr. said the RSD is in my whole body. :( He told me I cannot work like this and suggested I ask my family Dr. to put me on long term disability. I've been on short term since April. Two years ago, I was out on disability for six months. No one knew what was wrong with me back then. I've missed a lot of days from work before and after my first disability of six months. I don't know what to do about work. :(

My husband was in the room when Dr. examined and diagnosed me. I think he finally is understanding the pain I've been in for years. He has mixed feelings too. I haven't told my five children yet. My oldest who is 17 graduates on Thursday and I don't want to upset them so waiting for Friday to explain RSD to them. They know something is wrong because I'm rarely out of bed for long.

Thanks for all your support. Gentle hugs.

Hi,

I am so sorry about your verifcation concerning RSD. You have come
to a site of truely caring people whose hearts and minds are with you
and who wish you the best on your continued journey through RSD. :hug: