Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-21-2012, 10:18 PM #1
DanaH DanaH is offline
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Join Date: Jun 2012
Posts: 2
10 yr Member
DanaH DanaH is offline
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Join Date: Jun 2012
Posts: 2
10 yr Member
Default 12 year old daughter with RSD

Hi my name is Dana. My 12 year old daughter was diagnosed with RSD. Her's is currently in her right foot and knee. She has been on crutches since March. Her knee is almost frozen in place even with PT her range of motion isn't great. She's on Lyrica, and just increased to an adult dosage. The weekend she started Lyrica her appendix went crazy and she had that removed in May due to appendicitis. We live in the Midwest and there aren't really many peds clinics here for pain management. I am so lost on where to go and what to do or expect. I would just love to see my daughter walk again, but her pain is way to bad. She had a triple phase bone scan and has decrease upflow of blood in her foot and knee. So she stays very discolored when she gets up. Swelling is another major problem. Any help or any one with a child that Chloe could talk too would be great! Thanks,

Dana
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