Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-24-2012, 02:28 AM #21
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I am so sorry that you had to go through this. Sadly, most of us have been through the same scenario...I am glad that you PM doctor is at least working with you. I cannot take Lyrica, it makes me hallucinate and say really weird things. I would love to try the ketamine lotion, but I haven't found anyone who prescribes it. Lots of prayer and good wishes to you!

Cindi
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Sandy Shores (06-26-2012)

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Old 06-26-2012, 11:10 PM #22
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So how long have you been taking Lyrica? I did some more research on it last night and found numerous articles and blogs by people who had lost some or ALL of their teeth from taking it..Apparently, it's a side effect! That is quite surprising, but more frightening than anything. I've lost teeth before, had crowns, inlays and fillings. It's no fun and obnoxiously expensive! Have you hears about this? Have you had any side effects othr than the sleepiness?
Thank you for your response...best of luck to you!
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Old 06-28-2012, 07:40 AM #23
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I don't know where you live, but I live in Virginia. My Pain Management Doctor and my Foot Specialist both work with the University of Virginia. I don't think I've ever had doctors so understanding that when I go there, and they touch it or pull on it, I will cry. And I will no longer be able to function the rest of the day. I mean, they have to work with it in some ways, but they're never really too hard on me. They also try to understand as much as they can when they consider what surgery or therapy option would be best. They take the time to make sure it's right.

Well, I hope that you can get better help in the future! I wish you the best!
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Old 06-28-2012, 11:34 PM #24
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Quote:
Originally Posted by cindi1965 View Post
I am so sorry that you had to go through this. Sadly, most of us have been through the same scenario...I am glad that you PM doctor is at least working with you. I cannot take Lyrica, it makes me hallucinate and say really weird things. I would love to try the ketamine lotion, but I haven't found anyone who prescribes it. Lots of prayer and good wishes to you!

Cindi
hmm I didn't see that in the side effects paper work I got. I ve hallucinated for a while now .. b4 lyrics but if I had known lyrics could add to this problem I wouldn't have said yes.... uuuuuhhhhggggg!!!!!!
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