Im 22 and I had TOS surgery and devolped RSD in both my arms,chest,neck and face. As if the TOS crap wasnt already hard enough to deal with, i then end up with RSD. I can say that the botched TOS surgery I had is what took everything away from me. But my family does NOT understand any of this. It could be my fault too because im not good at comunicating, i just get angry instead, and so then they dont know why im angry. But i rather not talk about it eather because well its just to hard honestly.

Frankly, I get tired of talking about CRPS too! Maybe they are "tired" hearing about your pain because they know they cant fix it? I try to keep the truly useless chatter to a minimum with my husband, but I dont hesitate to talk about appointments, new symptoms, etc.