Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-05-2012, 06:39 PM #1
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Confused RSD in hands/arms question?

Does anyone else have a feel like there knuckles are little balls of fire? Oh my goodness, my knuckles are always killing me. Not to mention the rest of my arm. I have gotten to the point where i cant move my fingers in my rsd hand now due to the stiffness, and my knuckles are always swollen and red.

I just didnt know if i was the only one
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Old 07-05-2012, 11:02 PM #2
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yeah I understand that on a smaller level as it is not constant with me.. swelling yes so much that what seems like over night .. my wedding ring is wrapped around my finger or should i say my finger has wrPPED AROUND MY RING
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Old 07-07-2012, 11:07 PM #3
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You're not the only one. I have RSD in my left hand/wrist, and my hand is discolored, shiny, swollen, and painful. Oh and sorta deformed. Most of the burning, scraping pain is in my thumb area, but the other fingers are very painful as well. They had to remove the nerves in my wrist, plus I've had it for over 5 years, so it varies how bad the burning is. It's extremely sensitive to the sun. I had to have my wedding ring sized for my right hand because I have been unable to wear it on the left hand since onset.
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Old 07-08-2012, 08:12 PM #4
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Quote:
Originally Posted by RSDcandice View Post
Does anyone else have a feel like there knuckles are little balls of fire? Oh my goodness, my knuckles are always killing me. Not to mention the rest of my arm. I have gotten to the point where i cant move my fingers in my rsd hand now due to the stiffness, and my knuckles are always swollen and red.

I just didnt know if i was the only one
Yes! I have rsd in my left hand all the way up my arm. And the stiffness and burning is bad just as you describe. What medications do you take? And what do you do to help the burning? I am pretty young and have had rsd for almost 2 years, and have had little relief with most pain management stuff.

Thanks.
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Old 07-09-2012, 06:32 PM #5
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Quote:
Originally Posted by lema56 View Post
Yes! I have rsd in my left hand all the way up my arm. And the stiffness and burning is bad just as you describe. What medications do you take? And what do you do to help the burning? I am pretty young and have had rsd for almost 2 years, and have had little relief with most pain management stuff.

Thanks.
Mine is also up my arm. my elbow is just on fire today from the storm.
i am currently only on Lyrica and Amitryptelene.
I am trying to not use any opioid's. but everyday i feel worse, and the pain is started to take its toll. I am also young and i just got diagnosed.(all though ive dealt with it for many months) so i dont have a lot to offer, i wish i did. But i am here if you need someone. I have yet to get the burning to completely go away, i was able to use a tens unit for a while but now, my arm is too sensitive. A moist heat pack helps me gets some relief in overall pain, but does not get rid of it. Physical Therapy was gruesome but it did help with ROM, Pain not so much.

Many happy thoughts sent your way!
oh and also,I will say my doctor always says, to pump my hand (flat and then into a fist) periodically through the day. I cant no longer do that but i do wiggle my fingers as much as i can.
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Old 07-10-2012, 02:07 PM #6
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Originally Posted by RSDcandice View Post
oh and also,I will say my doctor always says, to pump my hand (flat and then into a fist) periodically through the day. I cant no longer do that but i do wiggle my fingers as much as i can.
Yes, pumping the hand can help, just don't try to go too fast, and pay attention to your pain levels. Remember that your body is going to feel the pain as much or more than your mind will. I made that mistake when I doing therapy after the nerves in my wrist were removed. I was trying to regain some movement in my wrist, so I was moving it (ever so slightly) back and forth thinking 'wow this doesn't hurt.' Until I almost passed out and puked at the same time! I told my therapist about it the next day and she said, "Well your body is still feeling the pain, Silly, don't do that!" So yes, lesson learned...pay attention to what your body is telling you.
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