Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-05-2012, 09:05 AM #1
MommadukesCRPS MommadukesCRPS is offline
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Join Date: Jul 2012
Location: Swfl
Posts: 17
10 yr Member
MommadukesCRPS MommadukesCRPS is offline
Junior Member
 
Join Date: Jul 2012
Location: Swfl
Posts: 17
10 yr Member
Confused LOST in SWFL with New CRPS diagnosis

Sorry I'm new.. Posted on someone's thread this? Please forgive me, I'm just trying get myself "out here"... Need you ppl more than you know
Hey everyone.. I was also just diagnosed from an accident in beginning of this year and am scheduled with my first SGB in a week. I was 15 and struck by a car leaving me with a brachial plexus tear and parlayed my right arm. I had a SGB when I was in the hospital because of the excruciating pain and had success alongside exp nerve grafting. This was in 1990. I was able to live w manageable pain until 2011 car accident and the pain in my arm became well unbearable. I unfortunately have ortho issues with my shoulder also but the pain from the nerves was worse of the two. Putting my down few days a month and progressing to daily when I was rear ended at a stop light in Fed 2012 and now I am basically in bed 20 hours a day since. Had to move back in with my parents, lost all my clients and can't even bath my 4 year old. My 16 year old has been awesome. So my neuro sent me to UofM and they diagnosed me with CRPS with on set from a tear in feb. Feel like I made it this far thru life, actually trained in gym for years and survived a near amputation of my leg to be handed my butt on a platter with CRPS. I'm on 100mg Fen patches and taking up to 8 30mg 0C a day with neurotic 3x day. I've been on meds for a year and this is all I can do to function. I pray that the SGB will allow me enough relief to begin therapy. With the already complex nature of my preexisting injuries it's all I can do to stay positive but I know God didn't bring me this far to have me in bed the rest my life. The burning is so bad and I bite back the tears when my 4 yr old climbs into my lap she deserves better. Sorry for venting on your post. I just joined and reading so many similarities brought me to tears, I'm over asking why and moved on to how much more..... My list of what I want to be able to do again in long and I won't to beach the other day only to be in misery from the breeze. I need the support of all of you, my sanity depends on it. Thank you for sharing you inspiration and hope. I won't give up today.
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