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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-20-2012, 02:57 PM | #11 | ||
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I'm able to touch my affected leg and always have. I think the desensitization helps with my symptoms. I never had PT for my CRPS II, but I do know that many programs incoporate this. Light touch is pretty unbearable, but constant heavier touch feels better. Does that make any sense? Not really I guess.
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07-22-2012, 01:52 AM | #12 | ||
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07-24-2012, 12:24 PM | #13 | ||
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07-24-2012, 04:02 PM | #14 | ||
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I can touch mine, but I can't stand other people touching it. My other half does desensitisation on it for me (as per the Consultant's request - sadist!!!! ) and I've learnt to let him do it. Feels like a burning hot poker though!
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07-26-2012, 10:32 PM | #15 | ||
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Junior Member
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I can touch the knee (and surrounding areas) more now than I could in the past...depending on how it feels at the moment. That's a tolerate though but it's not exactly comfortable. That part has always perplexed me because a hinged knee brace has always felt better ever since the fracture, atleast for awhile (it becomes too cumbersome and bothers the skin after 3-4 hrs) but it helps PAIN while having to be mobile! There was a time when I couldn't tolerate the slightest movement, touch, or any clothing around the leg at all. Shaving was a problem! It still gets pretty raw espec with flare-ups though but the SCS and desensitization at PT has helped to a point. When the SCS is off, it's awful!!
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