I've been scouring the internet trying to find information and options for my 13yo daughter with RSD throughout her whole body. I came across a forum posting *edit* for someone that used *edit*in Miami. I called him and he spent quite a bit of time with me talking about the dangers of katemeine treatments and how he has had 100% success rate in 100% curing the condition using his brain reprogramming. Obviously, very spectacle because up to now there has been no cure. He described the treatments that take place over 4 days, two per day, where he reprograms the brain to before the RSD/RND started and referred me to his video (google stacy rsd video). And the cost, a whopping $3000 per treatment, or $24,000! But if it cures it, obviously very cheap.

Before I get too excited, has anyone else heard of this or Dr. Nick or have any information on this?
Mike

There are residential children's RSD programs for children at a few different hospitals that have helped many go into remission. Children do have the highest rate of remission. You can find the info here on this forum.

HBOT is something to consider, along with warm water PT.

Be EXTREMELY wary of anyone that claims a 100% cure rate. This absolutely sounds like a scam to me......

She's already spent 2 weeks in Pittsburgh going through the therapy only to return home and have it come back worse that before she went. She's doing therapy every 2 hours and seeing pain specialist at Dallas Childrens and a neurologist in Fort Worth, and it's not getting better, maybe worse. Getting desperate.

Does anyone have any experience with this method???

I've never seen anyone post about it. Some children have been through multiple programs before going into remission.

RSD is difficult to treat. Has she experienced any relief from any meds or treatment? What are her symptoms and where? We're all different.

Buckhorn- my heart breaks for both our daughters. Mine is also 13 and also not doing well. I would also be very cautious with what this hypnotist is promising and charging. The price itself seems exorbitant for something as low-tech as hypnotism, unless he is putting many, many hours into each treatment. Even if he has a 100% success rate (which I find difficult to believe), he's taking advantage of desperate people.

That said, I have certainly met people who have used medical hypnotists and felt they were helpful for other medical problems (food sensitivities). I wouldn't rule out that it could be helpful to a degree for some people, I just can't imagine that it would be sure-fire or that the prices you were quoted were fair.

Lori

I don't know anything about this type of hypnosis but I would be reeeally careful with hypnosis.. especially with a child. I am a mom too and would feel just as desperate as you to help my child. But unfortunately hypnotherapy is very unresearched and has a history of making claims to fix all sorts of things with little to no truth.

Hi. My name is Stacy and I had RSD up until 6 months ago. I went to a Dr, Nick on Miami Beach and all I can say is I am out of the horrific pain and wheelchair. I have nothing to gain by telling any of you any of this but, with this doctor, he fixes the brain and calms the nerves down,which is the problem with RSD. I have a video on Youtube called Stacy's Miracle RSD. I had full body RSD internal as well. Please don't discount this. Watch the video and see for yourselves. I can do anything now.My new life is amazing.

the youtube video you suggested is made by Dr. Nick. This seems very strange to me..

I also feel the need to add that I think it would be impossible to be immobile and wheelchair or bed ridden for a long length of time and then go straight to a normal life. There would be significant atrophy and muscle tone issues. Also the video States you were on long term use of fentynol patches.... there would need to be a wean off period as your body would have been opiate dependent. Yet you say you immediately began a normal life after the four day treatment. I just don't buy it.