[BraveGirl]

Can anyone out there provide feedback, positive or negative, on intensive pediatric pain rehab programs?

My 13 y/o has been the the Mayo Clinic program in Minnesota and it was very helpful for her. She had a huge increase in functioning (going from crutches to a nearly normal walk). However, 3 months later, her CRPS has now spread to her hand/arm. We may return to Mayo and I am sure she would regain use of her hand again, however I have some reservations. I question whether they did enough aggressive PT/OT with her. They have a full day program in which the vast majority of the time is spent in psycho-educational classes. She had 1 hr of PT per day and her OT sessions were mainly focused on lifestyle management, rather than desensitization. I do think all of this was very helpful to her, however, she still has not regained full functionality in her leg, and now with the spread to her hand, I'm wondering if a program with more aggressive PT/OT would be the best next step.

I WOULD BE SO GRATEFUL TO HEAR YOUR EXPERIENCES.