NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   spilling my guts (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/173697-spilling-guts.html)

terralyn 07-27-2012 07:14 PM

Come on cankle buddy we are in this together! I myself just had a crying meltdown... we all feel weak sometimes. Pain and depression are liars. They keep us from realizing who we can be despite our disease.
I don't know you personally but we are united by our similarities. You have made me laugh on days when I was desperate for a reason to smile and couldn't see past the hurting. You are a beautiful person (cankles and all) and I'm thankful for you!

Big big soft hugs. :hug:

ger715 07-27-2012 07:33 PM

painman,
 
Quote:

Originally Posted by painman2009 (Post 901135)
The oxycodone is just oxycodone. no er or ir. and as for the migraine meds the furicept is one of the last on the list of meds they can prescribe for it. I tried imitrix when I was 18. regular furicept when i was 13. they tried naprelan, napraxin, isocit, and so on and so fourth. the furicept is furicept with codeine. (it used to put me to sleep so i could ride out the pain asleep) now. it does absolutely nothing.. no relief no sleepy. nada. so migraines are mine to deal with as naturally as possible. but I am always on the cusp of full blown migraine. This beast called RSD. just when I think I am learning to deal. it spreads or the flare gets worse. fir almost a full week I am using 2 canes .and have been couch bound. sleeping in my bed (or laying) seems to just aggravate the beast. as for right now.(dinner) first and last meal of most of my days.(how am I still gaining weight???)

The Er is the generic brand of Purdue's who manufacturers Oxycontin. This does not need the ER after it. Oxcodone is different and usually has tylenol addeded. Like my Oxycodone 7.15 is the narcotic and the .325 is the tylenol. This narcotic hit pretty quickly while the Oxycontin brand name by Purdue does not need the ER after it; only ones that are a generic by Teva have Oxycodone ER which again is the generic for Oxcontin. If you do not have the ER after the Oxycodone this is the one that releases fairly quickly...the ER is like a time release. Basically, I am taking a time release brand name Oxycontin and the Oxycodone (no ER) for breakthru when the Oxycontin is not sufficient and the pain breaks thru. I take the Oxycodone usually 4 times a day in addition to the brand name time release Oxycontin. Kinda confusing. Just seems like you are not getting enough pain med to at least give you some relief. Have you tried Ambien CR for sleep;? Once the Ambien CR wears off, my pain breaks thru and wakes me up. I do not lay down during the day because it is too painful. I wil sit in a recliner; but with throw pillows for my feet rather than the piece that extends from the recliner. Again, can only sit for a short time; but laying down during the day is out. I do take vallium a couple of tmes a day with my Oxycodone. This helps, not only for anxiety; but muscle pain. I do find this helps somewhat has well. It is sad to know this is not the life we signed up for; but what we have to make the best of with whatever meds or means to get us thru each day. I still do laundry and my cookiing not as good as it use to; but know I need to keep moving as much as possible. Without the pain meds not sure what I would do. Really rough. I wish I could be of more help.


(Gerry)

painman2009 07-27-2012 08:48 PM

I take all of my meds at night because during the day the kids r with me . and I might have to drive. but what I'm realizing is I am more alert when ont the oxycodone then when just dealing with the pain itself. Lately with my wife being
layer off and home I do get to take the pain killer earlier. but I have also been doubling up a lot this week, I don't know what has happened to make it this much worse. even my back issues are cranking up the volume, and my wrists are giving out painfully. I "do" see the sun through this but it seem at points unreachable. it doesn't stop the trek though. I will always trek on. just some times slower. I carry the poem "foot prints" with me every where to remind me. thank you all for your support. it gives me a stronger belief in that poem..

ger715 07-27-2012 09:08 PM

Quote:

Originally Posted by painman2009 (Post 901191)
I take all of my meds at night because during the day the kids r with me . and I might have to drive. but what I'm realizing is I am more alert when ont the oxycodone then when just dealing with the pain itself. Lately with my wife being
layer off and home I do get to take the pain killer earlier. but I have also been doubling up a lot this week, I don't know what has happened to make it this much worse. even my back issues are cranking up the volume, and my wrists are giving out painfully. I "do" see the sun through this but it seem at points unreachable. it doesn't stop the trek though. I will always trek on. just some times slower. I carry the poem "foot prints" with me every where to remind me. thank you all for your support. it gives me a stronger belief in that poem..

Knowing He is carrying you when there are only "one " set of prints is a gift only God can give. Hold on dear friend.

(Gerry)

debbiehub 07-27-2012 10:01 PM

Hi
 
Quote:

Originally Posted by painman2009 (Post 901135)
The oxycodone is just oxycodone. no er or ir. and as for the migraine meds the furicept is one of the last on the list of meds they can prescribe for it. I tried imitrix when I was 18. regular furicept when i was 13. they tried naprelan, napraxin, isocit, and so on and so fourth. the furicept is furicept with codeine. (it used to put me to sleep so i could ride out the pain asleep) now. it does absolutely nothing.. no relief no sleepy. nada. so migraines are mine to deal with as naturally as possible. but I am always on the cusp of full blown migraine. This beast called RSD. just when I think I am learning to deal. it spreads or the flare gets worse. fir almost a full week I am using 2 canes .and have been couch bound. sleeping in my bed (or laying) seems to just aggravate the beast. as for right now.(dinner) first and last meal of most of my days.(how am I still gaining weight???)

Hey,

You took the words right out of my mouth with how u r feeling,,,,I am grieving all I have lost and afraid of the future,
Hopefully we can meet soon, I don't think aug meeting will work for me but after that I am good."misery loves company! Looking. Forward to meeting u

Debbie

painman2009 07-28-2012 03:41 PM

Quote:

Originally Posted by debbiehub (Post 901209)
Hey,

You took the words right out of my mouth with how u r feeling,,,,I am grieving all I have lost and afraid of the future,
Hopefully we can meet soon, I don't think aug meeting will work for me but after that I am good."misery loves company! Looking. Forward to meeting u

Debbie

what a truthful and unfortunate saying. misery "does" love company. I too look forward to meeting you as well. I have heard much about you from junes meeting. I would like to meet the person with your courage and will.


All times are GMT -5. The time now is 12:30 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.