[reluctant@thetable]

I know this has been discussed before but after my visist with my MD I am confused again. I had a nerve biopsy. I had that because I didn't want to go through the EMG (I had read about the pain involved with that and that it wouldn't tell someone if he/she had CRPS- only that he/she didn't.) The nerve biopsy caused flaring throughout my body- increased pain and muscle cramping.

I got the biopsy results yesterday. I definitely have small fiber neuropathy which goes along with crps. But the doctor said it doesn't rule out peripheral neuropathy. He said that I might have had symptoms of PN before that weren't picked up but then my injuries to my right foot caused the increased symptoms. When I first was diagnosed with crps, my right foot was the only thing turning blue and cold. Now my left foot hurts (which could be because I'm walking strangely to avoid the pressure on my right foot). Both feet are somewhat cold- the right greater than the left. I have muscle spasms in all my limbs (no hand or lower arm involvement). My MD said PN travels through the limbs. I have more pain in my injured right foot but the MD said that could be mechanical and from the original injury which was over a year ago. I'm finding that my balance is beginning to go, I'm more fatiqued than ever (? from the meds), and overall see a progression that is scaring me.

I started treatment and medications rather quickly compared to many and that's why I've always considered my pain to be "not as excruciating" as others. However, I've been told by medical professionals that I have a high pain threshold. I did however have excruciating pain early on- I was unable to lift my foot and had to drag it along.

I seem to have symptoms that overlap. I do get the pins and needle feeling that goes along with PN. But my symptoms are much greater on my right side. Early on, my entire right leg went cold so there was definite assymetry which goes along with crps.

Now I'm so confused. I read up on PN but still wasn't clear. We are moving along with treatment for crps but adding Lyrica for PN. Throughout this injury/disease, I have always been on Cymbalta, lidocaine patches, alprozalam, and other meds.

I know people can have pn with crps but I don't want to have the invasive treatments for crps which are planned soon if I don't have crps.

Thoughts?

[debbiehub]

I also have shn now due to rsd that started in my left foot. Now, after many years I have full body muscle wasting and ite very scary. We tried ivig but it did not work. So your not alone!

Debbie

[debbiehub]

Small fiber neuropathy

[reluctant@thetable]

Originally Posted by debbiehub

Small fiber neuropathy

Oh Debbie, I'm so sorry we both are going through this. I see your postings and pray that you will find relief. It seems like you have tried so many things. Sometimes life just isn't fair. I'm sorry to seem down. It just must be the weather.