Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-27-2012, 03:29 PM #1
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Thumbs down no more opiates for noncancer patients?

http://abcnews.go.com/m/story?id=16857129&sid=26

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Old 07-27-2012, 03:38 PM #2
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There are to many conditions that qualify to have prescription opiates for them.
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GOD help me be faithful in the midst of my suffering. Alt1268
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Old 07-27-2012, 07:44 PM #3
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Unreal! wow...
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Old 07-27-2012, 07:50 PM #4
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What so many do not understand that this pain, because it is not cancer, and cannot be seen, must not really exist. When truth be told, there are article that will say these deseases are equivalent to a person with cancer; but the person with the cancer knows most likely will soon end. The rest of us with this terrible chronic pain frequently go into depression because we know this will last indefinitely. How do we get the media to understand this??
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Old 07-27-2012, 07:54 PM #5
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There are to many conditions that qualify to have prescription opiates for them.
Yes...if you are lucky enough to get a good Pain Specialist that understands the pain and knows how to correctly to do what is necessary to prescribe these meds to people with chronic painful deseases.

(Gerry)
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Old 07-28-2012, 04:23 PM #6
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I tried to read it but it goes in so many circles that no-one wins. It is seems that basically that only the people dying can get the right pain meds. I have seen reports saying that the only pain that rivals the pain felt by cancer is people with RSD.( not that this is what i am saying) I do not dare guess at what others may be "feeling" as pain is different for each person and is not a physical thing same as love and hate. but this is ridiculous how do they say the work for the citizens of the US when we seem to be left out of their equation . now that is discrimination, and we are the minority here. I hope some one higher up see,s this soon.
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Old 07-28-2012, 08:26 PM #7
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I tried to read it but it goes in so many circles that no-one wins. It is seems that basically that only the people dying can get the right pain meds. I have seen reports saying that the only pain that rivals the pain felt by cancer is people with RSD.( not that this is what i am saying) I do not dare guess at what others may be "feeling" as pain is different for each person and is not a physical thing same as love and hate. but this is ridiculous how do they say the work for the citizens of the US when we seem to be left out of their equation . now that is discrimination, and we are the minority here. I hope some one higher up see,s this soon.

RSD, as well as a few other diseases with severe chronic pain that is potentially life- long . As previsously mentioned in the article I read; since this pain frequently can't be seen; it is not treated with the pain that is often equal to that of a person dying of cancer.

Unfortunately, we can live this way for many many years without being properly treated and the meds withheld. The biggest problem is the usage of addicts making it difficult for those who need these meds to just get thru the day.
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Old 07-29-2012, 12:01 AM #8
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RSD, as well as a few other diseases with severe chronic pain that is potentially life- long . As previsously mentioned in the article I read; since this pain frequently can't be seen; it is not treated with the pain that is often equal to that of a person dying of cancer.

Unfortunately, we can live this way for many many years without being properly treated and the meds withheld. The biggest problem is the usage of addicts making it difficult for those who need these meds to just get thru the day.
There must be a better way than this.. no alternative was truly given. Its like telling a dr to stop treating patients because there are hypochondriacs in the world. How do you know who it is until its too late .
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Old 07-29-2012, 02:34 PM #9
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There must be a better way than this.. no alternative was truly given. Its like telling a dr to stop treating patients because there are hypochondriacs in the world. How do you know who it is until its too late .
I am fortunate to have a Pain Specialist who presecribes the necessary meds. He is very much aware of the pain we go thru. As previously mentioned; the only chance is seeing a doctor specializing in pain. The surgeons, intenists, will not give the heavy meds needed for this type of pain. Your internist may be able to refer you to someone; but again will not likely prescribe.

(Gerry)
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Old 07-31-2012, 12:17 PM #10
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RSD, as well as a few other diseases with severe chronic pain that is potentially life- long . As previsously mentioned in the article I read; since this pain frequently can't be seen; it is not treated with the pain that is often equal to that of a person dying of cancer.

Unfortunately, we can live this way for many many years without being properly treated and the meds withheld. The biggest problem is the usage of addicts making it difficult for those who need these meds to just get thru the day.
You are so right!! We lay here in pain every day of our lives and because someone else abused the opiates its us that are going to have to pay!! Soo mad, I'm in pain everyday of my life and I just pray that the burning will end.
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