Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-12-2007, 10:06 AM #1
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Default Had my surgery for the VNS.

I had my surgery yesterday and it went good. I got home about 7 last night. My surgery was to be at 1:30 and it was changed to 2:30 due to another surgery taking longer.

My cut in my neck looks about 2 inches long but where the box is is covered so I can't see it. So far I am doing ok with pain. I take my Methadone instead of the Ultraset that he gave me.

It will be around the 23rd when it is turned on. As I had said before a man from the company is coming down from Denver to show me and the Dr. how to set it. I hope I can learn and do it. My memory and stress makes me not be able to do anything anymore. I told that to my Dr. last night and he said he'd just turn it up to the memory part a little higher. LOL This will be the first one he has ever seen or delt with so it's going to be interesting.

I do know it takes time to see any difference. The book said up to 6 months.
With me, my depression is so bad I just don't know. I've had Drs. tell me I would never get well but maybe this will be the answer.

Thanks for all of the support from all of you.
Ada
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Old 04-12-2007, 11:34 AM #2
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rest and heal fast ada. and lots of prayers.
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Old 04-12-2007, 11:49 AM #3
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I'm glad the surgery went well - I hope it works for you.
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Old 04-12-2007, 12:21 PM #4
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Thumbs up too kool..

Hi Ada..
I am so glad it went well for you yesterday.
Now you can look forward to some hope for better days ahead, we are all rootin for ya an I for one am gonna realy look forward to updates. Do you feel like a pioneer blayzing the trail for the rest of us with yr virgin doc along for the adventure


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Old 04-12-2007, 12:32 PM #5
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Default Thanks for the support,

I do feel like I will be able to help others with the support of it if it does the job. We do know it can take up to 6 months to see a major difference. If it can help me, it can help anyone.

I have only heard around here of 2 that's been put in for bipolorism and epilepsy. I live in a small area so that's pretty good for here. My Dr. said I was the 3rd for him and the surgeon said I was his second so I do feel good about even getting it. I was worried about my insurance paying. But the Dr. said they have really jumped on the banwagon for getting the VNS for people with depression. The lady at the Cyberonics company sent in a letter to my insurance and they approved it the first time. She said she sent in two more just to explain what it was going to be put in for because it shocked her that they ok'd it the first time for me. I chalk it up though to all of the hell I have put them through. I have had the Governor and Vice President on them so they are fed up with me I think and think this is away to get rid of my ***** I believe. LOL I've learned not to give up for something I believe in.

I will keep you up on this Sandel. I have 2 women that work in my Drs. office that want to follow how it's doing for me, one for herself and one for an in-law.

As far as my virgin Dr. The man doesn't stay that way for long in learning. He has learned about every disease I have had to help me and he does for everyone. I honestly believe he kept Bill with me about 10 years longer then any Dr. could have. I consider him one if not my best friend through all of this. After 17 years you really do become friends with your Drs.

Thanks again for all of the support I get from all of you.
Ada
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Old 04-13-2007, 12:53 PM #6
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Hi Ada,

Just wanted to say congrats for for going through with it, glad it all went well

Yes, do keep us posted, I'm also very interested - shame you may have to wait 6 months, though - I'll keep my fingers crossed that it starts working *instantly*.

Can't be on the forum much at the moment, but I'll keep in touch,
all the best!
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Old 04-14-2007, 06:28 AM #7
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Chat Wishing You A Speedy Recovery ADA

Ada,

I'm so glad to see that your surgery went well. Concentrate on healing and feeling better for the time being. The rest will take care of itself.

Be blessed,

EJ
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Old 04-14-2007, 06:45 AM #8
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Default Hi Everyone,

Thanks so much for the support. I ended up in my PCP's office yesterday. They put clear tape over the cut where they box is implanted and I had an allergic reaction to it. It burned my skin and when I pulled up the corner of it, liquid ran out from under it from the burn. We had to take the patch off of it and leave it. I am also allergic to the white adhesive tape so we couldn't do it. It has steristrips on it for now. I can't take a shower for now for fear of getting the inside wet. Wouldn't want to short out my VNS. LOL

I know all of you deal with allergies too. I feel like I'm allergic to everything going. I just got a shot a month ago for allergies and it didn't help me at all. I'm hoping now that I moved into my new place that I won't have the allergies. I'm hoping there were things at my old place that I was allergic to.

Do any of you get a runny nose. I can start doing a little work and my nose starts running like a sift. I have to stop what I am doing and sit down to make it stop after I rest awhile. This is all of the time. Someone told me it was from the Fibro but no one I have talked to deals with a constant runny nose. While I'm trying to work, I'm having to constantly wipe my nose. It's been like this now for about 5 years. I have been getting allergy shots that long to try and keep it from happening.

Anyway, I am doing pretty good. I got a B-12 shot yesterday in hopes that it helps with my CFS. It's the first I have had of them. Do they work for any of you that have had them.

Thanks again for all of the help I get from all of you.
I wanted to say also, I wore my Lidocaine patch for more then 12 hours and now I am sick to my stomach. It does it to me every time.
Ada
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Old 04-14-2007, 07:19 AM #9
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Default Best wishes Ada

Best wishes to you. Thinking of you and wishing you well. Glad to hear your surgery went well and hope you have a speedy recovery. Sorry to hear about the complications of the tape. That is unfortunate. Glad you got it taken care of immediately.
Take care,
Sydney
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Old 04-14-2007, 12:14 PM #10
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Hi Dreambeliever--the very best to you and your recovery. You are quite a "trouper"!! Thanks for taking the time, despite pain and temporary set-backs, to share your "journey". You are an inspiration!

Most Sincerely,

Brokenwings
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