Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-13-2012, 01:28 PM #1
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Not sure where you are at but I would check the rsdsa.org website for an attorney.

I also have weight gain of about 30 lbs on neurontin and have found that the more I am able to do the better off I am.
Welcome to the forum!
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GOD help me be faithful in the midst of my suffering. Alt1268
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Old 08-13-2012, 09:47 PM #2
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Hello 1sadhaka......Welcome to NT !

I gained some weight after starting on Neurontin, then developed type 2 diabetes. Because of my weight (which was too much even before the Neurontin), that may have been in store for me anyway......but I expected it 20 years later (based on my family history)

For me, Neurontin is also very binding......and makes me even more tired.

I'd call that some pretty undesirable side effects, BUT......I still take it because it helps A LOT with the pain.

Lyrica is in the same class as Neurontin. It has many of the same side effects.....for SOME people. My insurance won't cover Lyrica.

Some people get some relief from the tricyclic antidepressents, like Elavil/Amitriptyline/Nortriptyline (? spellings)

Narcotics have helped me a lot.

Water therapy has been my savior.

Ice is a 'known' no-no for rsd'ers. I can definitely see that it has caused rebound pain for me, but if I've taken/used everything else in my arsenal......an icepack can be my best friend.

ALL meds have side effects. Which ones will be an issue for which patients is anyone's guess. It's weighing the pros and cons for each person's case.
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Old 08-13-2012, 09:49 PM #3
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Just to add......make sure to get an attorney who specializes in SSDI cases.

That worked for me at the ALJ level. Best of luck in the battle with SSDI and RSD !
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Old 08-15-2012, 09:52 PM #4
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Quote:
Originally Posted by finz View Post
Just to add......make sure to get an attorney who specializes in SSDI cases.

That worked for me at the ALJ level. Best of luck in the battle with SSDI and RSD !
Thanks for all the input. I reached out to local rsdsa group for the first time. I am meeting an attny who specializes in ssd that they recommended. That has become my focus.

And yes the weight gain has raised concern about diabetes here as well.

Thanks again for suggestions and feedback!!
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Old 08-16-2012, 08:58 PM #5
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Originally Posted by alt1268 View Post
Not sure where you are at but I would check the rsdsa.org website for an attorney.

I also have weight gain of about 30 lbs on neurontin and have found that the more I am able to do the better off I am.
Welcome to the forum!
Thank you very much for recommending reaching out - I am a member of RSDSA but didn't mentally connect that one!
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Old 08-16-2012, 09:04 PM #6
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Quote:
Originally Posted by alt1268 View Post
Not sure where you are at but I would check the rsdsa.org website for an attorney.

I also have weight gain of about 30 lbs on neurontin and have found that the more I am able to do the better offal he I am.
Welcome to the forum!
Thank you very much for recommending reaching out - I am a member of RSDSA but didn't mentally connect that one!

I also made sure my Attny specializes in SSDI.

again, thanks everyone for so many helpful responses and advice.
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