Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-16-2012, 11:07 AM #1
AliM AliM is offline
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Join Date: Jul 2012
Posts: 21
10 yr Member
AliM AliM is offline
Junior Member
 
Join Date: Jul 2012
Posts: 21
10 yr Member
Default Long term Gabapentin?

I have had RSD since December, but it was only diagnosed since June. As soon as the doc put me on Gabapentin, I noticed huge differences in my foot's sensitivity. Before I could barely stand a sock, let alone rub lotion on it. Within 2 weeks of taking it, I could wear socks again AND rub lotion. Yay! But then last week, my hubby went on a week-long business trip and accidentally took the prescription insurance card with him, and I couldn't refill my prescription. I had an utterly miserable week. I hurt badly, and by the end of each day, I was in tears.

I didn't think Gabapentin helped with pain. Maybe it does?? Regardless, the thought of going off of it permanently scared me, if my week turned out to be so bad without it. It made me wonder if Gabapentin was something I should always need to be on.

So that's my question. Do you who have RSD use Gabapentin forever? Or is it more designed to be a short term drug docs use to try to battle RSD into remission? (Which is what my doc is trying to do now.) I asked him that on my last visit, but he didn't really answer the question.

What are your experiences? Do you take Gabapentin forever? Or is that bad to do? I just never want to have such a miserable week again. :P
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