Frustrated with doctor and RSD. So my pump has been in for 8 wks., and what a journey. I M healed from surgery, and mort importantly, I am off all oral pain meds (not a walk in the park). Yesterday, I went to change the med in my pump because morphine had made me so nauseous and weak (I lost 10lbs). Now I'm on dilaudid and buprivicaine. While in his office, I asked for the same Triple Phase Bone Scan I have asked for 3 times.
He went on. About how no matter what it said, our treatment would be the same. He had given me uplifting advice like this before. "no cure", "progressive", bla bla bla. I told him that people are noticing my skinny legs from the atrophy and as a patient, I needed to know where I was in this RSD process. He finally agreed to order the test, but also said my insurance may not cover it because it was not necessary for treatment? What? I asked if he could recommend a physical therapist that works with RSD patients to regain some muscle, but again he doesn't know.
Does anybody have this experience with their doctor? Does anybody know an RSD doc in Indiana. I just hope this new med combo will give me the ability to get out of bed more. Thank you for your help