Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-05-2012, 10:19 PM #11
LIT LOVE LIT LOVE is offline
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First off, where do you live? There certainly are programs that provide free drugs for low income patients in the US. Are you in Canada?

Methadone is very inexpensive and has been used by other RSD patients successfully.
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Old 09-05-2012, 11:09 PM #12
ElsieGrant ElsieGrant is offline
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Methadone would be the most obvious choice and one that should be easy to get...but the only clinic in town which has a doctor licenced to prescribe it is making it impossible for me. He refuses to give me any even after a letter from my family doctor and is convinced it will 'ruin my life'...his exact words. He didn't deny my pain and he even agreed with me that RSD pain is very severe...but for some reason he will not prescribe methadone to RSD patients in specific...his exact words. It's been a real struggle with that one and I do not know where else to turn with methadone since I filled out a form that said I was accepted for the free program but I can't travel out of town or anything like that to see someone else

Also when it comes to other free programs and compassion letters they are either rejected or ignored and I don't always understand why. I can't tell you how much I have been put through the shredder on this one. There were a couple of times I was taking samples of a promising new drug just to get by until an application or letter went through only to have to stop taking it when the doctor decided it was pointless. I am in Canada and I find that so many of the things I hear about the medical system in the States do not apply to here.
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Old 09-06-2012, 01:27 AM #13
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I have to cope without meds, this doesn't work for me but others I have posted it for say it helps.
http://www.openfocustraining.co.uk/exercise.html
Also put PARC in your search engine, it is a very good Canadian site that I have used in my research
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Old 09-06-2012, 04:23 AM #14
LIT LOVE LIT LOVE is offline
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While taking a bus might be painful to visit a doc out of town, the longterm benefit might well be worth it... You should be able to get 2 months scripts at a time.

Unfortunately I'm just not familiar with the programs and resources available in Canada. Sorry!

Quote:
Originally Posted by ElsieGrant View Post
Methadone would be the most obvious choice and one that should be easy to get...but the only clinic in town which has a doctor licenced to prescribe it is making it impossible for me. He refuses to give me any even after a letter from my family doctor and is convinced it will 'ruin my life'...his exact words. He didn't deny my pain and he even agreed with me that RSD pain is very severe...but for some reason he will not prescribe methadone to RSD patients in specific...his exact words. It's been a real struggle with that one and I do not know where else to turn with methadone since I filled out a form that said I was accepted for the free program but I can't travel out of town or anything like that to see someone else

Also when it comes to other free programs and compassion letters they are either rejected or ignored and I don't always understand why. I can't tell you how much I have been put through the shredder on this one. There were a couple of times I was taking samples of a promising new drug just to get by until an application or letter went through only to have to stop taking it when the doctor decided it was pointless. I am in Canada and I find that so many of the things I hear about the medical system in the States do not apply to here.
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