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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Hi all- been away for a while

 
 
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Old 04-15-2007, 03:57 PM #1
debbiehub debbiehub is offline
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Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default Hi all- been away for a while
It's been a while since I have written- just taking a little break- As my RSD gets worse I just find it so hard to cope and sometimes hearing how bad everyone is doing just makes me feel sadder. But on the other hand I love this forum and the nice people I have met here
Im am so frustrated with the lack of research in this area! I am sick of hearing it as a "Mystery Disease" -Its not such a mystery with so many people affected!
We need for the public to be more aware and I dont know how we can do that? RSD should be as familar as MS or ALS-!

Sorry to be venting but I am just so frustrated! My friend who also has RSD really bad in her mouth now said her mouth felt like it was being stuck with 1000pins!
Just inhumane.....
I am reading the "secret" but I am finding it hard to use with the pain issue!

Thanks as usual for listening

Debbie
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