Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-15-2007, 03:53 PM #1
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Exclamation ER visit

Well I broke down and went to the ER. Just couldnt handle the pain anymore, and wanted a little relief.

At first the nurse didnt believe I was in any pain, was kinda lookin at me like a drug chaser. Seen that look so many times

Well, while one nurse asked questions the other was running my blood pressure, and by the look on the face of the nurse asking questions I knew something was wrong. The blood pressure was 190/115!! I never had blood pressure over 140/90.

They took me straight back to a bed, and told me that I was lucky I came in. They checked me over real well, and discovered that one side of my body was colder than the other side. That helped my story because the colder side is the side I was complaining about. It even feels like my insides have RSD.

They told me I have to take blood pressure meds, and pain meds. I have a predisposition for high blood pressure, and the pain causes it to go higher. Now I know for sure that I am not crazy, it did spread

Thought I would share this with everyone in case there is someone else having same troubles. If your having a headache, and excrutiating pain, you might want to go get seen right away. The high blood pressure is a killer according to the ER docs.

Here is another little tidbit of info I found that might save a life, or at least some grief.

YOU MUST KNOW *77

I knew about the red light on cars, but not the *77. It was about 1:00 p.m.
in the afternoon, and Lauren was driving to visit a friend. An UNMARKED
police car pulled up behind her and put his lights on. *Lauren's parents
have always told them never to pull over for an unmarked car on the side of
the road, but rather to wait until they get to a gas station, etc. *

Lauren had actually listened to her parents advice, and promptly called *77
on her cell phone to tell the police dispatcher that she would not pull over
right away. She proceeded to tell the dispatcher that there was an unmarked
police car with a flashing red light on his rooftop behind her. The
dispatcher checked to see if there were police cars where she was and there
weren't, and he told her to keep driving, remain calm and that he had back
up already on the way.

Ten minutes later 4 cop cars surrounded her and the unmarked car behind her.
One policeman went to her side and the others surrounded the car behind.
They pulled the guy from the car and tackled him to the ground. The man was
a convicted rapist and wanted for other crimes.

I never knew about the *77 Cell Phone Feature, but especially for a woman
alone in a car, you should not pull over for an unmarked car. Apparently
police have to respect your right to keep going to a safe & quiet; place.
You obviously need to make some signals! that you acknowledge them (i.e. put
on your hazard lights) or call *77 like Lauren did.

Too bad the cell phone companies don't generally give you this little bit of
wonderful information.

*Speaking to a service representative at ** Bell ** Mobility confirmed that
*77 was a direct link to state trooper info. So, now it's your turn to let
your friends know about *77.

Send this to every woman (and person) you know; it may save a life.

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Old 04-15-2007, 04:22 PM #2
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Aleent--first--thank GOODNESS you went to the ER and got the high BP situation, etc. straightened out!!! You were VERY lucky to have caught your high BP in time....

Secondly--THANK YOU THANBK YOU for the info re *77! I had NO IDEA that feature even existed!! OMG, Lauren is EXTREMELY FORTUNATE to have known about it, and it obviously served her VERY WELL! Hope to HECK that weirdo is behind BARS--and STAYS THERE...

Wow--I WILL be telling other women about this *77 feature, Allent...THANK YOU AGAIN for posting it!!!

Most Sincerely,

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Old 04-15-2007, 09:46 PM #3
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Default Long time

no see...........Allen!

I have the opposite effect with my Blood Pressure. Only they never believe me. When I had that major back surgery a year ago last November, it was done on Wed. By Saturday they refused to give me any pain meds period because my BP was so low. It was something like ummmm 85'/60 or a bit lower. I was in so much pain I couldn't even move. Not only from my feet burning, but the incision & not being able to hardly move anyway without help. They said my BP would go lower & I kept telling them it would go back up if they gave me pain meds. I realize that most of the time when people are in pain their BP goes sky high. BUT my body does not react to alot of meds like it is suppose to do. My body wants to react the exact opposite of normal. BUT of course I know nothing about how my body reacts to different swituations. So I called my hubby who was at home & told him to get up, get dressed & get his behind down to the hospital but make sure you bring my pain meds with you cause they won't give me anything & I told him why but he knows by now too I react different than most people do to meds etc etc etc.

About 30 minutes after I took my pain meds after my honey buzzed down to the hospital, which btw took about an hour cause of how far we live from Sacramento, my BP was back around 105/75. Before the surgery my BP was usually high & I was on BP meds. After surgery I have never taken high BP meds since. I even went to a heart specialist clinic to make sure all was A-Okay with me. It was & he said sometimes people just up & change & never have to take them again. To this day though, when in extreme pain my BP is lower than when I am in my normal pain mode.

Good you had yourself checked out. You do need to take care of yourself & your BP. It can kill if too high. And yours was WAY HIGH kiddo.

Take care,
DebbyV
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Old 04-15-2007, 10:05 PM #4
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Hey Allen,

TG you went in time, no more Suffering in Silence, if you please....and yes, for anyone, RSD or not, past a certain age, ya gotta watch that BP!

Hi Debby,

Long time no see...good to see you back here...

take care, both of you,
all the best
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Old 04-16-2007, 12:12 AM #5
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I was trying to verify that *77 or # 77 number thing- and I ended up finding this-
from TrendMicro
http://www.trendmicro.com/vinfo/hoax...ial+%2377+Hoax


[ *Threats
o Scams & Hoaxes

Dial #77 Hoax

Type: Urban Legend

Description:

This hoax informs its target recipients of a new emergency cell phone number, #77, which connects to a local highway patrol or sheriff's office. It actually narrates the story of someone's daughter who was saved from a criminal posing as a policeman in an unmarked police car. It states that the girl had immediately called the said emergency number and the police men were able to rescue her in no time.

The Urban Legend Zeitgeist could not find any reported incident that closely matches the described event. According to them, dialing #77 or *77 on a cell phone might contact the highway patrol, but only if the person happens to be in an area that supports the said feature.

Also, the email mentions that the incident allegedly took place in Virginia, which has now converted its emergency hotline to 911. Therefore, #77 may no longer be functioning.

Trend Micro advises all recipients to ignore and not to forward the said email message.

Original Message:

Please read everyone. Very good information to pass on, especially to young women!!!!!!!!!!!!!!!!!!

I never even knew about this #77 feature! This actually happened to one of my dearest new friend's daughter. Her daughter, Lauren, is 19 yrs old and a sophomore in college. This happened to her over the Christmas/New Year's holiday break. It was the Saturday before New Year's and it was about 1 PM in the afternoon. Lauren was driving from here, Winchester, to visit a friend in Warrenton. For Those of you who are familiar with the area, she was taking 50 East towards Middleburg and then was going to cut over to 66 via 17.

Those of you who aren't familiar with this area - 50 East is a main road (and two lanes each side with a big median separating East and West lanes), but is somewhat secluded, meaning mostly residents along the road, rather than commercial businesses. Lauren was actually following behind a state police car shortly after she left Winchester and was going just over 65 mph since she was following behind him. An UNMARKED police car pulled up behind her and put his lights on. My friend and her husband have 4 children (high school and college age) and have always told them never to pull over for an unmarked car on the side of the road, but rather wait until they get to a gas station, etc.

So Lauren had actually listened to her parents advice, and promptly called #77 on her cell phone to tell the dispatcher that she would not pull over right away.She proceeded to tell the dispatcher that there were 2 police cars, one unmarked behind her and one marked in front of her. The dispatcher checked if there were 2 police cars where she was. There wasn't and she was connected to the policeman in front of her and he told her to keep driving, remain calm and that he had back-up already on the way.

Ten min later 4 cop cars surrounded her and the unmarked car behind her. One policeman went to her side and the others surrounded the car behind. They pulled the guy from the car and tackled him to the ground..........the man was a convicted rapist and wanted for other crimes.

Thank God Lauren listened to her parents!

She was shaken up, but fine. I never knew that bit of advice, but especially for a woman alone in a car, you should not pull over for an unmarked car in a secluded area. In fact, even a marked car after dark should follow you to a populated area. Apparently police have to respect your right to keep going to a"safe" place.

You obviously need to make some signals that you acknowledge them (i.e. put on your hazard lights) or call #77 like Lauren did. I am so thankful that my friend was just sitting at our book club meeting telling us this scary story, rather than us at her house consoling her!

Be safe and pass this on to your friends. Awareness is everything]

the google link with more hoax info-
http://www.google.com/search?q=Dial+...ient=firefox-a


But I do know if you are unsure about your safety - you can signal to the officer real or not real { by using flashers and driving slowly} and proceed to a well lit, safe and busy area before stopping.

You can use 911 to call and verify - especially if you are at all nervous about if a officer is real or not.

So far I haven't found out what *77 or #77 is for, if anything.
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Old 04-16-2007, 09:07 AM #6
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Wink Popping out of woodwork...to add .02 worth. LOL

Hey Everyone.

It is a very good idea to not stop for police, unmarked or other wise, until you are in a more populated area. It IS perfectly legal for you to proceed to a well lit parking lot, or even the police station it's self when a cop is trying to pull you over, as long as you DO NOT act like you are trying to flee or give him the slip, or anything else.

You CAN call 911 to let the dispatcher know what is going on....and they can verify if the police officer behind you is a real one or not. They are in contact with the police, and can let him know exactly what you are doing, and you can hear directions from him (via the 911 dispatcher) also.

In some areas, along some Highways or Interstates, there are some of the blue information signs that give info on how to contact the State Trouper's office by dialing * and some other number. Here where I live, going up and down Interstate 20/59 it is posted that *HP (so that would be *47) will get you in touch with the High Way Patrol office, and that you can use that in the case of an ER. Everyone might want to look on the Highways and Interstates around where they live, and see if there are such signs posted. You might also be able to find out this type of info by calling your Highway Patrol office and asking them if they have such * codes (or whatever they are called). Seems to me that they should be able to give you some kind of answer to that question.

As far as anything that cell phones do, the only thing that I know that is about universal here in the states is their ability to call 911. Even a cell phone that has no service (but that has power/is charged) can call 911. That is why they have those drives where they ask folks to donate their old, but working, cell phones to battered and abused women's shelters. They are trying to get cell phones to as many women as they can, because they are so useful in ER situations, even when there is no service to them.

Another good reason to keep a cell phone with you all the time when you are out, is so that if there IS an ER that happens, and you are unable to talk to rescue workers for whatever reason, they can look in your cell phone to see who your "ICE" (In Case of Emergency) people/contacts are. Just put them in your phonebook feature on your cell phone, and it will help in a ER, if ever one should arise. Again, you can even do this with phones that have no service.

I want to thank Allen for his post that got this line of discussion started. Also, because he is always trying to look out for all of us here, the best way that he can. So, Thank You Allen!! I am glad that you went to the ER, and that they LISTENED to you, finally. You said that "they said" you needed to have BP meds AND Pain meds..right? So, does that mean that you will be able to have something to help with your pain again? Were they able to set you up with a doc that might be able to help you out? I know that sometimes ER's can do that. Or they can at least refer you to someone. The one here does it all the time for all different kinds of problems that they need to have followed up on, but that don't necessarily require another trip to the ER (although if there is no other option, then they have the folks come back to them for the follow up stuff. Usually, this happens because of Insurance issues/lack of insurance). I am just so glad that you went, because that BP was scary high! Mine goes up too, when my pain levels are up. Just about EVERY time that I go to the doc or to the hospital to have procedures done, my BP is elevated because of the trip up there (remember, my doc is in another town and it takes me about an hour and a half to get to him). But, it doesn't STAY that way.....it just likes to go up and down a lot, I guess. But, I would be scared to death to have it ever read as high as your got! Please, please promise that you will take the meds, and take care of your self, ok?

Alright..this wound up being longer than I meant for it to be (what's new with that? ROFL...all of you "Oldies" know that I can't seem to ever write anything "Short" no matter how I try! LOL), so I am going to end this here. I will try to be back with a better post, catching everyone up on all the happenings around here. I have LOTS of Big News to share!

((Hugs))
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Old 04-16-2007, 10:36 AM #7
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I went to the ER last Thursday night and the docs and nurses looked at me like I was just looking for drugs. The doctor literally said well what are you here for? Drugs??? I said I am here because I am in extreme pain and I wanted him to do something to help me.... They ran my blood pressure for the third time and it was still hihg so they gave me 2 shots of pain meds and sent me on my way...... Has anyone ever heard of lidocaine not working for them. It doesnt work for me it just irritates me and makes my CRSP flair up......

[QUOTE=allentgamer;88541]Well I broke down and went to the ER. Just couldnt handle the pain anymore, and wanted a little relief.

At first the nurse didnt believe I was in any pain, was kinda lookin at me like a drug chaser. Seen that look so many times

Well, while one nurse asked questions the other was running my blood pressure, and by the look on the face of the nurse asking questions I knew something was wrong. The blood pressure was 190/115!! I never had blood pressure over 140/90.

They took me straight back to a bed, and told me that I was lucky I came in. They checked me over real well, and discovered that one side of my body was colder than the other side. That helped my story because the colder side is the side I was complaining about. It even feels like my insides have RSD.

They told me I have to take blood pressure meds, and pain meds. I have a predisposition for high blood pressure, and the pain causes it to go higher. Now I know for sure that I am not crazy, it did spread

Thought I would share this with everyone in case there is someone else having same troubles. If your having a headache, and excrutiating pain, you might want to go get seen right away. The high blood pressure is a killer according to the ER docs.

Here is another little tidbit of info I found that might save a life, or at least some grief.
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Old 04-16-2007, 11:56 AM #8
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Default Hi Allen,

Blood pressure is definatly a killer. That is what finally got Bill.

His Dad died at the age of 42 and his Grandfather at the age of 53. It ran in his family. Yours was way way too high. You really need to buy you a blood pressure kit to keep up with it because the meds don't always work.

Bill was on 5 blood pressure meds. Our PA use to say he didn't know how Bill was alive back years ago. His would go as high as the 200's on top and around 135 or 140 on the bottom. They worked on him for over 20 years and no one could get his down to where it was even close to normal.

It's what causes strokes. Bill had the cebral hemorage in the back of his head and that was from his blood pressure being too high. He had gotten up and hadn't had time to even take his blood pressure meds.

Whatever you do Allen, keep up with it and if you see the meds aren't working call your Dr. or if you see if gradually keeps climbing and doesn't come down.

Glad they are helping you finally. I am glad to see you post also. You too Jose.

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Old 04-16-2007, 01:01 PM #9
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Default Pain management today

I have a doctors appointment today, gonna start getting ready in a few minutes, but wanted to say thanx for the replies and encouragment. You all are the best!


It doesnt seem the bp meds are working that great So it is a good thing they got me into this clinic so soon. Will let ya all know what transpires here.

Wow it is good to see Deb and Jose!!! Glad you all shared with us, it is always a pleasure to read everyones replies for new tidbits. Sorry if that info was wrong on the *77, but it still needs to be known about this type of crime. One of my (not anymore) close friends was arrested for just this type of crime. Jose has some good ideas there about 911. You do not have to pull over if the vehicle is unmarked, cant stress this one enough. Thanx Jo for straightening out the mis-information, to bad people have the need to lie, it just makes things more difficult for people when it really happens.

Just look how they messed up getting SSI, or saying you have RSD LOL. It would be taken more serious if there wasnt so many people trying to rip off the government or get pain meds all the time.

Here in california they use the umarked cop car trick, and others to carjack people. So keep on your toes about things like this.

Man this BP thing is even more scary after reading everyones stories
You can bet money I will be keeping track of this, as my own dad died at age of 48 2 days after his 2nd triple bypass. That is the reason they did the angio that they botched in 2000 that gave me the dreaded RSD.
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Old 04-16-2007, 05:21 PM #10
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Default Clinic visit

Well it wasnt what I expected, but is it ever what we expect lol. There wasnt a doctor, only a PA and she wasnt ready to deal with the problems I am having.

The bp is 160/100, still too high so she gave a prescription for new meds for that, and some elavil to help with sleep. They are supposed to call me in a day or 2 with an appointment time to the pain management clinic, they have doctors in this one. This PA agrees with the ER doc's in that the high bp is a culprit of the pain.

So pain really gets your bp up lol.
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