NeuroTalk Support Groups - RSD? Avoid SUGAR!!! (and coffee and alcohol!)

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - RSD? Avoid SUGAR!!! (and coffee and alcohol!) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/176119-rsd-avoid-sugar-coffee-alcohol.html)

Quote:

Originally Posted by Kevscar (Post 914093)

Yeah I know the Police Medical Appeals Board refused early release of my Police Pension due to Permant Disability saying I had not followed NICE Guidelines and had the standard treatments.
No guidelines for the treatment of RSD/CRPS have ever been published in the UK and I have been willing to go further than any other UK Patient to be cured, agreed to have 5 day ketamine coma, one hospital refused to amputate while I'm awake, a second is now condsidering it There are no standard treatments every one is an experiment

The only time amputation should be considered with RSD is if a life threatening condition such as gangrene has set in as a result of elephantiasis.

This is a good description of the issues involved.
http://www.rsdrx.com/rsdpuz4.0/puz_116.htm

Quote:

Originally Posted by Kevscar (Post 914093)

gotta love the pencil pushers and the bottom dollar people right..
listen kevscar. do only what you are comfortable with because you have to live with the end result. and remember that a lack of a standard treatment plan is not a plan in itself. I would question their decision and challenge their information.. be well

I have applied for a Judicial review of their decision. Should know next week if I;ve got it.