Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-09-2012, 03:27 PM #11
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I go to Dr. Young in Ukiah. I'm about an hour and a half north of the bay area. He has me in PT (who also does biofeedback), I see a psych, cortisone shots, lidoderm patches, I have nerve stimulating gloves, I still see my ortho who x rays my hand because I have bone thinning. The only thing I havent done is nerve blocks. I switched from I take 300x3 a day but I heard "therapeutic" dose is in the thousands of mg.

Everyone has their hits and misses and every doc will have their recipes for rsd. Thats the first obstacle is finding an appropriate doctor. Honestly, out of all the therapies ive done, the only thing constant in relieving the pain is the medication. I sob at the fact. When doctors tell me I have a chronic condition that is also progressive, what do I do? Adjust? The only thing keeping me on my feet and dulls that pain is meds. I was diagnosed late so they want aggressive treatment.

I'm sorry for going on, it turned into a long thing. I just hope you find what works for you.


Take care and best wishes.
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Old 09-10-2012, 12:44 AM #12
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Dear Morgan - I understand what you are saying on everything. Tomorrow I start with a biofeedback Pain Psych Dr - and it is a 2 hour train ride plus bus ride to get there and the same on the way home. So am off to bed now. It sounds like you have a good Dr fitting your needs. My very best to you.
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Old 09-11-2012, 04:16 AM #13
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Hi
I saw Dr Carden about 4 years ago but he suggested at that time just nerve block. I did a few years ago have a lidocaine infusion in my hometown with a different pain doctor. For me the lidocaine did not help but before I had tried the patches and they did not. Everyone is different so if you find relief in patch you may want to try the infusion.
I hate to say negative about drs unless it is extreme but I did not care for Dr C. I felt he was pushy,did not review my records,and did not listen. When I stated I had to think about the block which I did not have with him but later with someone else anyhow a few weeks later the nurse called to see if I decided and to offer a special price which really turned me off. I did not bring up anything about the price either so it was just odd. Again he may have helped other people and I have had bad experiences with some docs so why I am overly skeptical.
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Old 10-06-2012, 01:23 AM #14
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Thank you Daniella / never had got back to saying thanks -
things were pretty bad for me for awhile.
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