Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-11-2012, 04:29 AM #1
daniella daniella is offline
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I am very sensitive where no doctor even can touch me now. Any of the RSD specialists I have seen have been ok and even have said they understand. I responded to your eye post so have eye problems,I did have ear problems where I would put my hand over my ear from pain it felt like eari infections which I had but sometimes without one I still had pain. Noise bothers me as do smells but it is not painful so it is not a big deal to me compared to pain just annoying.
For myself it is best to just try to stay in the day and though very hard try not to worry about the what ifs or spread of the condition. Again this is easier said then done but I try to focus on each day and doing the best I can.
Feel better and hope the week gets better
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Vrae (09-11-2012)
Old 09-11-2012, 11:50 PM #2
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Quote:
Originally Posted by daniella View Post
I am very sensitive where no doctor even can touch me now. Noise bothers me as do smells but it is not painful
Thank you so much for the feedback. I too have always been VERY sensitive in my right foot and leg, but now this thing with just touch me and it can send me into what almost looks like a seizure.... ug! And yes noise, certain sounds nearly send me over the edge and God forbid if it’s a startling noise, like a pop can being cracked open, or repetitive beeps and dings. But this constant hum in my ears it a little much lately. The sounds and touch can be, in some ways, as bad as the pain. I suppose it is all relative. So sorry that smells are also a problem for you. That stinks, no pun intended.
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