Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-18-2012, 07:44 PM #1
MRSDJV MRSDJV is offline
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Hello there - I have just been diagnosed with RSD - seeking all the information I can about this. Any suggestions for information on the spinal injections?
I am excited to find a forum for this.
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Old 09-18-2012, 09:55 PM #2
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Hello MRSDJV and Welcome to our little corner of NeuroTalk!!

FIRST THING....I think you should know...No two of us with RSD/CRPS have the same symptoms and No two of us respond the same to the same medications and/or treatments.

RSD is a MONSTER, as I'm sure many here will agree. I have had RSD going on 9 years now. I was doing good until I was bounced between doctors thanks to insurance. Starting over with a new doctor every month or so is NOT good.

The best thing is, It sounds like you have caught it early and hopefully you have a doctor who is willing to treat aggressively!!!! There is a chance for remission.

I'm not sure which nerve blocks you are having... upper or lower.

I've had 5 lumbar blocks and unfortunately they either didn't last long or didn't work at all. The longest one worked was 8 hours, the shortest was 45 minutes. In my case when these wore off...my pain increased exponentially. When they did mine they used Fluroscope...I wouldn't have had it done any other way...it allows the doctor to see exactly where the needle is going.

If you are having a cervical block, I'm sure someone here will gladly come along and tell you their experience with that type of block also.

I sincerely wish you the best and if you have any other questions please do not hesitate to ask... someone will be around shortly to help you in any way that we are able.

Gentle Hugs,

Abbie
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Old 09-20-2012, 05:53 PM #3
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Welcome to Neurotalk,

This has been a life savor for me and many others. Rsd can be lonely with family members and friends not understanding the disease or its process. Feel free to ask questions, rant, rave or just participate in the forum. We are all friends here and no question is stupid. We learn by asking questions and being that we are all at different stages we help each other.

As far as blocks, sometimes they help sometimes they don't. It took mine 2 plus years to work and get a couple of months worth of bearable pain.
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