[allentgamer]

RESEARCH FUND AND DONATIONS
APRIL 2007 - JOINT RESEARCH GRANT ANNOUNCED
BY AMERICAN RSDHOPE AND THE RSDSA
PRESS RELEASE – April 9 – 2007

American RSDHope and the RSDSA Award Grant for RSD Research to the Children’s Hospital of Los Angeles

Lynne Orsini, Executive Director of American RSDHope, and Jim Broatch, Executive Director of the RSDSA, jointly announced this week the award of a $50,000 Grant to Doctor Richard Boles of the Children’s Hospital of Los Angeles, California.

Doctor Boles' one-year Study will focus on maternally inherited mitochondrial DNA sequence variants and CRPS-1; Are CRPS-1 and other functional conditions genetically related through mitochondrial DNA?

Doctor Boles will examine up to 300 subjects over the course of the year and submit a final report to American RSDHope and to the RSDSA; a summary of which will be published on both websites.

This grant is the first time the two national RSD/CRPS Awareness Organizations have worked together on a research grant. Keith Orsini, one of the founders of American RSDHope and a long-time CRPS sufferer himself, said “We are all very excited here about working with the RSDSA on this project. Jim Broatch and I have long discussed our organizations working together on a project. When Jim shared Doctor Boles proposal with us, we knew this was the one.”

CRPS, Complex Regional Pain Syndrome, is known as the most painful form of Chronic Pain that exists today. There is no known cure and very little in the way of treatments. It is most often linked to a nerve injury of some type but can be caused by anything from a burn, sprain, or surgery, to a break or a fracture. CRPS most often strikes victims in their 30’s and 40’s but can occur at any age. There are between 1.5 and 3 million victims nationally.

Keith went on to say, “I am very interested to see if Doctor Boles will find a link here, a genetic predisposition on the maternal side. RSD, or as it is being called now, CRPS, claims women as its victims as often as 65% of the time.

Lynne Orsini, Executive Director of American RSDHope, is very excited about the research. “I realize we have a long way to go – but this could be a very important step in the right direction. I hope this will bring more awareness to the general public about what a devastating disease this is.”

According to Doctor Boles, “Our Hypothesis is that a brain/nerve energy deficiency plays an important role in the development of many functional disorders, including CRPS-I as well as migraine, depression, chronic fatigue, irritable bowel and others, at least in some people. This deficiency can be due to maternally inherited changes in the mtDNA code.”

STUDY DETAILS

If you are interested in participating in the study, or simply learning more about it, please click on the following link; DOCTOR BOLES STUDY INFORMATION


American RSDHope is a national non-profit organization dedicated to raising awareness of RSDS, or Reflex Sympathetic Dystrophy Syndrome, the nation’s most painful form of chronic pain. For more information about RSDS, also known as CRPS, Complex Regional Pain Syndrome, visit their website at AMERICAN RSDHOPE or you can write them at; American RSDHope, P.O. Box 875, Harrison, ME, 04040. 207-583-4589

The RSDSA is a national non-profit organization dedicated to raising awareness of RSDS/CRPS, visit their website at RSDSA or you can write them at; RSDSA, P.O. Box 502, Milford, CT 06460. Tel: 203.877.3790

Please share this information, as well as the Study Details, with your listservs, websites, and Support Groups. Let's help Doctor Boles get his 300 patients so that he can complete this study as quickly as possible.

[Sandel]

Thanks for posting this for us Allen.
An have a great day bud,
Sandra

Hi,
I thought I would add this article on inherited mitochondrial DNA. Hugs, Roz

http://en.wikipedia.org/wiki/Mitochondrial_DNA