Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-02-2012, 12:50 PM #1
KirstyMarie KirstyMarie is offline
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Join Date: Oct 2012
Posts: 1
10 yr Member
KirstyMarie KirstyMarie is offline
New Member
 
Join Date: Oct 2012
Posts: 1
10 yr Member
Default New to the forum -CRPS

Hello all!!!
I have just joined this forum. I have had CRPS for nearly nine years. I have it in my right foot/leg, my back, my left hand/arm. I am also having symptoms in my left leg now
I get so much pain, colour changes, swelling (lots!!!!) weakness, tingling and more!! It look me along time to get a diagnosis, I have regular appointments with my pain specialist. I have regular nerve blocks in my back, they only usually last a few weeks.
I have been to London a few times now to see different specialists, as my symptoms are pretty bad, last year I was in hospital, it was the worst 2 months of my life. Nobody knew what to do,I was in so much pain, I was also incontinent, which at my age was awful! I had to rely on everyone to help me.

I am hopefully going to be trialling the Spinal Cord Stimulator, any opinions/suggestions??

Also what is your story?? Would be nice to talk to people who know how hard this is. Xx xx
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