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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Hey there ~
Deb: Glad to see your here again, even to vent. Sometimes thats what we all need. So whats been going on...Hubbies been having more rsd & related health issues - Now has a brown spot on his hand that is unexplainable. It's not a bruise and is lighter in the mornings - As he moves around more it's darker. We've been dealing with Dr's and blocks.....Dr moved him to 2 days of therapy instead of 3 - not seeing enough improvement with I'm guessing?? So wondering what the next step is..... Lots of stuff going on here at home too. As the "norm" it is hard on families and close friends. Our kids are struggling so were trying to keep them on track with friends, grades and school work. I feel somedays that the life is being sucked out of me or that I could "go under" at any time....Not because of the kids of course....just everything My grandmother is in the hospital - She has days to live......at 86 they wont do the surgery for the tear in her aorta. Still havent heard anything from the w/c judge....so monies are tight and bills are backed up...... Had our landlord p*ssed off the other day because I paid the rent on the 2nd - She said "The first is the first!" - (Never had anyone be as ornery as that.....of the last 4 other months we've lived here she's gotten her money a day or two early - before the first) Now because I paid it on the 2nd - she's p*ssed off......Go figure....just our luck I'm still only working 3 days a week as tourists/business has not yet picked up......hopefully soon I'll be back to 5 but then I wonder how I'll keep up with that and everything else... Not on a pity party here but wanting to vent as Deb did..... Some days I dont know how I hold all of it together. DID get a letter from Social Security saying he would be receiving another letter soon with a date to see a judge. AND - did start with a church group last night - think it will be very beneficial for us, it's a support group for people dealing with all types of things going on in their lives. Cancer, other medical probs/issues, addictions, hang-ups, marriage issues, disappointments, etc. It seems to be a really nice, understanding, and accepting group. Well thats it for me - Gonna read through some of these posts I'm so backed up on. One of the things that give me the most joy these days is helping others. Maybe I'll have some wise words of wonder to share. ![]()
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HubbyWithRSD . . |
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#2 | ||
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You can vent anytime! Life isnt easy with this for the RSDer and their family
Deb |
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