Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-05-2012, 03:41 PM #1
tkayewade tkayewade is offline
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Default Ankle foot orthotic

Do any of you rsd sufferers of the leg/foot persuasion have an orthotic? I'm supposed to be fitted next week. I'm worried about being casted. I still have considerable burning and pain. Even with scs. Anyway, do people have success with these? Any info would be appreciated.

TK
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Old 10-05-2012, 04:26 PM #2
ginnie ginnie is offline
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Default Hi tkayewade

I do haved orthotics, and an ankle brace. Alot wrong. I did not experience any problem with the casting. They were ever so gentle. I didn't develope PN or RSD until after several surgeries on the ankle. I hope this goes smooth for you. the orthodics do help me walk, and if I do anything active, the ankle brace does work. It does not agrevate the RSD. I wish you all the best. ginnie
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Old 10-06-2012, 02:09 PM #3
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Great! Thanks for your experience. If it helps me walk, it will be worth the time. I have had so many falls. I think it's about time to give up my job (teaching) I will actually be looking for a job where I can sit down more. Being on my feet7 + hours a day just isn't possible anymore.
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Old 10-06-2012, 07:32 PM #4
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I have AFOs that go from just below the knee down to my toes. They are about the same as a cast or walking boot in the way it positions my ankle/feet. I have RSD in both feet. I have had multiple stress fractures in both feet. I wear the AFOs when I must drive, stand or walk for long periods. Such as going grocery shopping. Sometimes I wear one or both at night in bed, if the pain is really bad.

I try to go without them most of the time, because casting is supposed to be problem for RSD. But, if I am going out for errands or shopping, I almost always wear them.

Mine make my feet feel better because it takes the pressure off my feet and puts some on my calf. Also keeps the bones straight and in the right position.

I wear diabetic type knee high tube socks with them.

You might find it squeaks when you walk. A little baby powder inside your shoe should help that.

Start out only wearing it for short periods.

Be mindful that the orthotist has to get it right... Your foot needs to be in just the right position when it is fitted, or you may have trouble with it putting pressure on your knee over time. So, if your knee or hip start to bother you be sure to go back to have the AFO checked.

I think a lot of the success has to do with the skill of the orthotist.
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Old 10-07-2012, 09:34 PM #5
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Quote:
Originally Posted by tkayewade View Post
Do any of you rsd sufferers of the leg/foot persuasion have an orthotic? I'm supposed to be fitted next week. I'm worried about being casted. I still have considerable burning and pain. Even with scs. Anyway, do people have success with these? Any info would be appreciated.

TK
I've casted hundreds of patients for semi-rigid orthotics. Shouldn't be any worse than a lukewarm bath for a few minutes! Each casting strip only stays on your foot for 3 minutes or so.
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