Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-11-2012, 11:42 AM #11
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Do you know what might have caused the RSD?
Like an accident or injury to those areas?

I'm wondering if there might be some underlying misalignments, myofascial issues or muscle imbalances that can be addressed and may help with some of the pain.
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Old 10-11-2012, 09:22 PM #12
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Massage hurt me, so I don't get those. My right arm/shoulder feels like it is on fire, so even the slightest touch hurts. I wish I could swim but I don't have a pool. I don't remember the nerve block procedure, I think they knocked me out. I have no idea what kind of cocktail they gave me. Why does that matter? I am just curious.
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Old 10-11-2012, 10:42 PM #13
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Quote:
Originally Posted by lexiegirl250 View Post
Massage hurt me, so I don't get those. My right arm/shoulder feels like it is on fire, so even the slightest touch hurts. I wish I could swim but I don't have a pool. I don't remember the nerve block procedure, I think they knocked me out. I have no idea what kind of cocktail they gave me. Why does that matter? I am just curious.
Depending on the cocktail, the length of relief can vary greatly. If you were simply knocked out, especially without fluoroscopy, you'll very likely have a less effective result. You are supposed to have a massage following a block btw. http://www.rsdrx.com/massage_therapy.htm
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Old 10-12-2012, 08:19 AM #14
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I have RSD in my neck, upper body (front and back), both arms, and both hands. With my neck...the biggest things for me when the pain is really bad are lidoderm patches (on my neck or sometimes under my bra straps depending on whether my neck or back or shoulders are worse), heating patches OVER the lidoderm patches, and a scarf to protect against air movements, cold, etc (which for me send my pain into overdrive). I take one or 2 hot baths a day with epsom salts and that seems to help. I also went through desensitization therapy last year for my back and neck and this helped tremendously. It was awful to go through but so worth it...helped to normalize the sensations in those areas. I'm still sensitive and have days where I can't stand anything touching me there but for the most part I am back to normal clothes and bras (albeit looser clothes than i used to wear before). tDCS has helped a lot with the sensitivity in my hands and arms but it hasn't yet helped with my neck, back, front, or shoulders.
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Old 10-12-2012, 02:00 PM #15
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Just wanted to mention using heat with Lidoderm patches can be dangerous. It disperses more Lidocaine faster and can be bad for your liver I think.
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Old 10-14-2012, 02:48 PM #16
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I can't get massages--they hurt way too much. I don't have access to a pool with warm water unfortunately. What kind of cocktail should I get when they do the blocks?
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Old 10-15-2012, 02:43 PM #17
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Quote:
Originally Posted by lexiegirl250 View Post
Hi, I have RSD on the right side of my neck, my shoulder, and my arm. Does anyone have any suggestions for helping to alleviate the pain besides the medication that I already take? I know heat pads, but anything else? It is a harder area to treat because I have to wear a top and bra. I have switched to strapless bras, but any other suggestions? Thanks.

I have rsd in right arm. My shoulder/neck was awful for months. Took an awesome pt lady massaging it every day for a couple weeks. (yes it was painful but everyday got better) i had been babying my hand too much, and had knots all in upper arm and shoulder. Might be worth a shot.

Now i make sure i do shoulder neck exercises everyday, if not every other day. I still have some pain in my shoulder and neck but its not as bad as it used to be.
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