Capsacin cream and patches have had conflicting info reported about them in regards to RSD. I would not experiment on a chd with them. They are very painful. They may have a long term benefit, but I would only pursue this with a children's RSD expert. ;)

Supporting therapy
 

I don't know if you have any personal RSD experience but everything hearts if you try to touch the affected limb. I was not able to put a shoe on my left foot and was jumping on crutches and so on. You are right the capsaicin patches available here in the US do not work. I tried them but I was not talking about those = available here. I agree though, if it concerns a child it should be consulted first with an experienced professional (whoever that might be). The prescribed capsaicin cream worked for me though as a supporting therapy, that's why I asked pharmacist, when in Europe, if they have anything similar. And they did and works well for me = I can walk again.
:winky:

Thank you all
 

Thank you everyone! We decided to NOT continue with the aggressive PT approach.
It's so difficult watching your child in tremendous pain and not be able to help.
We have a fabulous Orthopaedic Surgeon in Annandale (for the Fairfax member) who has experience with CRPS/RSD/RND - she has worked with many service members who develop the disease. Unfortunately still having trouble finding therapists who have experience in the pediatric form.
Regarding the ultrasound - that's interesting because my daughter's OS mentioned ultrasound at her appt on Fri. I asked about Calmare and she said there are a lot of studies being done on electrical stimulation and u/s in veterans. I'll look into that more.
I appreciate all of the advice and support. Many days as parents we just feel lost.

This is wonderful news. It's awesome that you've found Orthopedic Surgeon who knows what she is talking about. I was not so lucky and it was long before internet. I found my answer on the Late Night Show, seems unbelievable today. I did try the electrical stimulator but it did not help. Your daughter needs something that will bring the blood flow back to her foot That's why I am using the patches even today. If she goes for the ultrasound therapy (this should take one month or two) and it will help, could you please then spread the news on internet. I am sick of reading the horror stories people go through, when the solution is simple, painless and also "high-tech".

:wink: