Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-09-2013, 09:00 PM #1
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Default So, I just got my first walker today...

I got my first walker today, well it is called a rollator (walker with a seat). I don't need it all the time, but there have been many times at home and when I was out that I really needed it. I hate that I am needing this, but should be thankful that I have it now.

Also today, I had two biopsies on my face...the same side as my RSD Those needles hurt big time!!

Been a tough day

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Old 07-09-2013, 09:16 PM #2
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Aw Nanc, that is a blow to the ego for sure. When I got mine at age 36 I swear I felt like an 85 y/o woman. I got mine after my back surgery went horribly wrong (woke up w/ CRPS) and had to learn to walk again. Thank goodness I have been able to retire it for a while and get by with a cane, BUT I’m glad that I have it in my arsenal of things to use when necessary. Hang in there hon and hopefully this will ultimately, somehow make life easier for you. I also hope all goes well with the biopsies.
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Old 07-10-2013, 07:06 AM #3
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Hi Nanc - you really have had a crappy day if you've had two biopsies. That must've been really painful! Sending big hugs.

I've got an NHS freebie rollator. It's totally crap as it has no suspension at all and makes my hands go numb. I also have to lift it up kerbs which makes it impossible for me to use. I have been known to use it to go to the hospital appointments as I have my husband with me for them so he lifts it over obstacles, and the hospital is only a few minutes walk away. I'm moving on to a wheelchair this week - both to push as a rollator and to be used properly. Hoping that will work better.

I honestly don't understand why rollator manufacturer's haven't looked to the pram industry to make them more usable. You see all these lovely, soft-rolling, bouncy prams and most rollators are juddery and naff. Hope yours is better!
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Old 07-10-2013, 09:25 AM #4
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Hi Nanc - you really have had a crappy day if you've had two biopsies. That must've been really painful! Sending big hugs.

I've got an NHS freebie rollator. It's totally crap as it has no suspension at all and makes my hands go numb. I also have to lift it up kerbs which makes it impossible for me to use. I have been known to use it to go to the hospital appointments as I have my husband with me for them so he lifts it over obstacles, and the hospital is only a few minutes walk away. I'm moving on to a wheelchair this week - both to push as a rollator and to be used properly. Hoping that will work better.

I honestly don't understand why rollator manufacturer's haven't looked to the pram industry to make them more usable. You see all these lovely, soft-rolling, bouncy prams and most rollators are juddery and naff. Hope yours is better!
Thanks Kathy! My face is feeling much better today

With my insurance, I only had to pay $26. It seems to be a pretty decent one. It has a basket, smooth rolling wheels and good brakes. It is just big! My husband tried to put it in the trunk of our car and it was too big. Maybe we can get it in a different way...I hope since it takes up the entire backseat

Good luck with your wheelchair
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Old 07-10-2013, 09:33 AM #5
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This is the Walker I want, now how do I get the government to pay for it.

http://www.luckyrob.com/wp-content/u...0/08/At-At.jpg
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Old 07-10-2013, 09:33 AM #6
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Aw Nanc, that is a blow to the ego for sure. When I got mine at age 36 I swear I felt like an 85 y/o woman. I got mine after my back surgery went horribly wrong (woke up w/ CRPS) and had to learn to walk again. Thank goodness I have been able to retire it for a while and get by with a cane, BUT I’m glad that I have it in my arsenal of things to use when necessary. Hang in there hon and hopefully this will ultimately, somehow make life easier for you. I also hope all goes well with the biopsies.
Thanks Vrae and yes, it is definitely a blow to the ego. I am 46 and about cried at PT while trying this style rollator out. I thought, I am only 46 and this is not where I thought I would be at this age. I stopped working at the end of Dec, which has been a huge adjustment for me and now this walker....

Glad you were able to retire your walker and can use a cane. I can't use a cane because my RSD is in both of my hands, shoulders and left arm.

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Old 07-10-2013, 09:34 AM #7
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This is the Walker I want, now how do I get the government to pay for it.

http://www.luckyrob.com/wp-content/u...0/08/At-At.jpg
That's awesome!! Good luck getting the govt to pay for that one!!
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Old 07-10-2013, 12:25 PM #8
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Originally Posted by Kevscar View Post
This is the Walker I want, now how do I get the government to pay for it.

http://www.luckyrob.com/wp-content/u...0/08/At-At.jpg
Oh my word, YES! Now those nasty people who think it's funny I have to use one wouldn't be laughing if I had one of those. Or a Sherpa tank.

Nanc - glad your face is feeling better. Sounds like you got a bargain on the walker, hope you find a way to fit it in the car easier for you! Got a pic of your walker? I did a review of mine on my blog:

http://riseabovepain.wordpress.com/2013/03/26/94/

I was going to pimp it up but I won't be using it once I get the chair. I can't pimp up a chair that's on loan though, what a bummer lol.


ETA: Kev - what I want out of a walker:

http://media.aintitcool.com/media/up...typhon_(1).jpg

What I'm more likely to end up with if I try and order above on the internet:

http://upload.wikimedia.org/wikipedi...ngTrousers.jpg
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Old 07-10-2013, 12:52 PM #9
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I am not real sure how to attach a picture, we'll see if this works!

Mine is similar to yours Kathy, it is just heavy duty...bigger! I am tall, so this is what they gave me
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So, I just got my first walker today...-image-jpg  
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Old 07-10-2013, 01:05 PM #10
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Oh yeah! I think yours might have slightly better wheels than mine too. Good luck with it.
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