Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-22-2012, 01:50 PM #1
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Default Hyperbaric Oxygenation Therapy (HBOT)

Has anyone looked into this or have tried this type or therapy?
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Old 10-24-2012, 05:38 PM #2
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Quote:
Originally Posted by yellow_ribbons View Post
Has anyone looked into this or have tried this type or therapy?
I have- I had around 40 treatments "dives (technically)"-with some success! It didn't send my RSD into remission but it did significantly reduce the size and location of areas of my pain and swelling, reduce the blue hands/temperature and after each treatment I had never felt so full of energy in my whole entire life as I did when I came out of each treatment. I like to think of it like a battery recharger. What else would you like to know? There are different kinds of chambers, treatments- not all are equal.What else would you like to know? I still have my bad days and even though it didn't take it away completely, I would recommend giving it a try- not invasive and painless, just time consuming, but you can sleep or watch a video, listen to music or talk to the nurse/doctor. I am willing to try just about anything at this point, even if it only amounts to some reduction.
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Old 10-25-2012, 05:09 AM #3
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this used to be a big subject here.

Try using our search engine and find the older posts.

you need 4 characters for searching so try HBOT, or spell it out.
"Oxygen" or "hyperbaric" should do it.

I cannot share my search links here, something about the software, so you have to do your own, sorry.
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Old 11-02-2012, 11:48 PM #4
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My daughter tried HBOT. She had 40 dives at different depths. It helped a little with her pain but she has some great progress in ROM. She started on crutches and at 20 dives she did not need them. Helped her her color (RSD both lower legs) helped her sleep better and had more energy. Now with the weather change she is in a flare but we are hoping it won't last long. Good luck to you if you try it!!!
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Old 08-25-2013, 03:28 AM #5
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I am going to try Hyperbaric Oxygen treatments for my CRPS. My CRPS seems to be progressing rather rapidly right now. I am having some bad side affects to my pain medications too; I have Central sleep apnea. This is where your brain stops telling your body to breathe. It is not obstructive. I wear a Servo ventilator when I sleep. That includes naps. I was just put on oxygen (with the Servo). The thought is, if I can breathe better at night and during naps, then maybe I'll feel better during my awake time too. I am hoping I can somehow reduce the pain meds (yeah right?).

I have read through the HBOT related forums on this sight and information on the Web. My husband has done lots of research, including talking with several doctors across the US. Bless his heart. HBOT is his idea, and I am willing to try just about anything to stop the progression of my CRPS. I am in so much pain ... well, you all know about the pain. HBOT is an expensive endeavor. The treatments, the lodging, and transportation for 6-8 weeks. Not to mention I need to have someone with me as I can't manage on my own very well. So logistically it is very complicated.

I plan to keep a diary. I am thinking I might post updates here too. I am also wondering if there are others that are currently being treated or who have recently completed treatments via HBOT. I would like to know your thoughts/results, etc. So, if you wouldn't mind sharing, please? Thanks.
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Old 08-25-2013, 04:15 AM #6
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I've researched about HBOT too, but being on the good ole NHS, they don't offer it, and the cost is way out of my price league. I'd love to try it, the science is sound, there have been some good results, and plenty of folk seem to get something out of it...

DJhasty, it would be brilliant if you did a diary about your HBOT, I'll be fascinated to see how it goes for you - and I'll keep my fingers crossed that you achieve some pain reduction. That would be worth any amount of time and hassle

Good luck.

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Old 08-26-2013, 02:13 AM #7
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OMG DJ! You're really having a rough time of this! I'm very interested in knowing how the HBOT goes for you! I really hope it provides relief for you.

I've no idea if my insurance will or will not cover it. I'm stuck in limbo for where to go next. HBOT and/or Calmare are on the agenda.
Please do keep us posted.
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Old 08-26-2013, 02:07 PM #8
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Thanks Bram and AZ-Di. HBOT is not covered by Medicare either. HBOT is considered Off-Label, meaning the FDA has not approved it for the treatment of CRPS. We will have to cover this ourselves. It was difficult to decide just what treatment to put our money on. HBOT is the least invasive and somewhat helpful. We are hoping for the best.
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- Diagnosis 2010 following
- Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture
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Old 08-26-2013, 04:43 PM #9
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There was a lady here who had good success with this with her daughter. She made a thread on it - give it a search :-) Let us know if you try it!
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Old 09-01-2013, 04:31 PM #10
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Hi,
I had RSD/CRPS through IV/Needle Injury back in 2007. I had a couple of nerve blocks and then 30 sessions of hyperbaric therapy. I had 20 and 30 sessions since then due to flares of RSD. It helped with my pain, skin and sleep although no remission. The only down size is ear tubes were needed because i could not stand the pressure. Now one hole from the ear tubes did not close which affect some hearing. Ask the facility to give you some financial assistance. If i remember correctly, i did not have to pay for my second (20X) sessions.
Good luck.
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