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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-05-2012, 11:31 PM | #1 | ||
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Member
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I still have a temp. It's about to expire, and I wonder if I should just bit the bullet for the permanent or just keep renewing lol. I'm only 38, so I'm hesitant, but I really can't walk long distances. Anyway, just wondered if anyone else faced this.
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10-06-2012, 12:59 AM | #2 | ||
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They are going to grant me a temp one. Is it costly? What do you mean should I just bite the bullet for the permanent?
take care, |
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10-06-2012, 05:53 AM | #3 | |||
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Senior Member
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Get the permanent one. I am only 28 and i hate that I need one...but I do. I figure that if I ever don't need it then I just won't use it. Simple enough, right? It's important to take care of yourself and do what you need to make your life just a little easier (goodness knows it is hard enough with RSD).
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10-06-2012, 06:56 AM | #4 | ||
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Member
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Get the permanent one. No charge in MN for getting one, (lasts 5 years I think, then must be renewed) but regulations/cost may vary state to state.
If you need it, you need it. Walking can be difficult for many of us with CRPS. I don't have one for myself, but I did get one for my 89 year old mother who lives in a nursing home and it is an absolute godsend when I have to take her anywhere!! Take care of yourself. |
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10-07-2012, 01:16 PM | #5 | |||
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Quote:
On a humorous note, my husband says he married me for my parking. |
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10-07-2012, 04:58 PM | #6 | ||
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Elder
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Truely if you have trouble walking, there is a time and place for the placard. I would go ahead and do this, for those times, such as some event, where walking would hurt. I don't use mine just to run to the store. I am 60. However if I went to a concert, half a mile away, this was a good idea, (or state fair). It is not your age, but the conditions you have that warrent using this card. ginnie
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10-09-2012, 09:17 AM | #7 | ||
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Junior Member
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I got mine this year and I am 38 also. I took the paper into my dr asking for the renewal of my temp but he just filled it out for the perm one. I cried all the way home. I don't use it all the time but when I need it I need it. Also, I live near Sun City (55 and over city). Many times the spots are already all taken when I go to use it. But it is nice to have on those bad days. Hang in there.
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"Thanks for this!" says: | ginnie (10-13-2012) |
10-10-2012, 12:30 AM | #8 | ||
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New Member
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If it makes you feel any better, I am 24 with a permanent. I didnt want it at first, but realized that I need it with the RSD in my ankle. I cant walk more then 20 feet without having to grab on my husband to take the weight off, thinking they may relieve some of the pain.
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"Thanks for this!" says: | ginnie (10-13-2012) |
10-13-2012, 12:20 PM | #9 | |||
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Junior Member
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I have had the paperwork in my glove box for my perm handicap placard for months. Hard to bring yourself to get it done at a young age. But, I think of all the times that it could be useful and it makes me want to do it. At this point, anything that makes living with our disease a little easier to me seems worth it. (regardless of age)
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"Thanks for this!" says: | ginnie (10-13-2012) |
10-13-2012, 03:06 PM | #10 | |||
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Senior Member
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Quote:
Essentially, she was stopped for some sort of a moving violation and the officer spotted just her permanent plaque sitting on the seat next to her - not even a permanent license plate - and immediately began interrogating her as to all meds she was on. Turns out she was on a small dose of a benzodiazepine, which medical studies show can cause impairment, but unlike the case of alcohol neither public nor private money has apparently been made available to establish a safe level in terms of blood concentrations, whether (unlike alcohol) it's deleterious effects can be safely off-set through the use of "wakefulness drug," etc., and as a result a policeman is allowed to presume that a driver who commits a moving offense while using a benzodiazepine is DWI. And in the case of this grandmother, because of quotas, a DWI looks good on the arresting officer's stats - whether or not it results in a conviction - the lady was handcuffed and jailed overnight until a judge threw out the charge at her arrangement the next morning!!! (And this in Deep-Blue Los Angeles County.) So here's the practice point: IF YOU ARE TAKING ANY MEDICATION LABEL TO WARN USE OF ITS POSSIBLE EFFECT WHILE DRIVING OR "USING HEAVY EQUIPMENT, ALWAYS PUT YOUR PLACARD IN AN ENCLOSED COMPARTMENT - NOT THE DOOR WELL - WHICH YOU WILL NOT HAVE TO OPEN IF CALLED UPON TO PRODUCE YOUR LICENSE, REGISTRATION, PROOF OF INSURANCE, ETC. At least that was the advice I got from my psycho-pharmacologist, and when I took it to my pain doc, he said that while he hadn't considered the issue but it appeared to be sound advice. For what it's worth . . . Mike
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