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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Need help. (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/179159-help.html)

Kevscar 11-11-2012 04:34 AM

Put it off as long as you can got appointment to see Professer om 19th Dec to see if he's willing to experiment on me

jpcrps 11-20-2012 06:12 AM

vitamin c prior to surgery to prevent spread of crps
 
Hi,

I am new to the forum so can't post any links yet. I have read about a course of high dose vitamin C prior to surgery being helpful to prevent spread of crps.

The other comments regarding anesthesiologist's involvement is something I have read about before too.

I hope you do not need need need the surgery as there is always the risk. This is one reason I have refused the Spinal Cord Stimulator - I do know of many who have benefited from SCS for many years, but for me, I said "no thanks".

Best of luck to you, and please keep us posted on how things go.

Please google "Vitamin C prior to surgery to prevent spread of crps" and you will find some information about it.

Aloha,
Jenny

suz66 12-12-2012 10:12 PM

Thanks for the replies. Jenny, I have also read about the vitamin C and have been taking it everyday. I read it should be taken for a year before the surgery. I am trying to go completely holistic and have been talking to my health food persons. I also was recommended the spinal cord stimulator, but also refulsed it. I have too much trouble with other infections and side effects. I walk with a cane and do ok, but the cold weather causes me to tighten up a bit. I usually walk with crutches when walking alot. I know this is something I need to bear and will take it one day at a time. I am grateful for the people on this site and for all the encouragement. Hugs and Prayers

CRPSsongbird 12-13-2012 11:43 AM

Quote:

Originally Posted by suz66 (Post 927916)
I have had RSD for four years now and have been diagnosed with osteoarthritis in both hips; severe in right, which is side originated in on me. Am allergic to most pain meds, orthopedist recommends hip replacement, as rt hip is bone on bone, but pain dr says no due to risk of flare up from surgery. Pain dr says rsd doesn't spread without another trauma and just wants to pump me with meds and injections.. Anyone have any advice?

AS far as pain goes have you talked to your doctor about marijuana? They make a THC pill you can take. My godmother had lupus AND Fibromyalgia. She was allergic to all pain meds including Tylenol and Ibuprofen. It might help if your aren't allergic to that as well! And by taking it in pill form you don't have to ruin your lungs! Just thought it might be worth a shot :hug:


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