Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-23-2012, 07:57 AM #1
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Question

I have had crps for just over a year. Began in left foot, but am having symptoms now in left hand.

I am a newbie here, and want to learn more about sores from crps. I have seen pictures of oozing sores and injuries taking longer than normal to heal.

My question is ~ what kind of sores are most common for crps? Does everyone that has crps eventually get sores? When? Do they only happen in the affected area? How do you treat them?

Sorry for so many questions, but I like to be informed and this is an area I really don't know much about.

Thank you for any responses.
Jenny
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Old 11-23-2012, 02:39 PM #2
PhyllisJ PhyllisJ is offline
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Originally Posted by jpcrps View Post
I have had crps for just over a year. Began in left foot, but am having symptoms now in left hand.

I am a newbie here, and want to learn more about sores from crps. I have seen pictures of oozing sores and injuries taking longer than normal to heal.

My question is ~ what kind of sores are most common for crps? Does everyone that has crps eventually get sores? When? Do they only happen in the affected area? How do you treat them?

Sorry for so many questions, but I like to be informed and this is an area I really don't know much about.

Thank you for any responses.
Jenny
Welcome, Jenny, but so sorry you're having to join our club. This stuff is not fun, but you came to the right place! RSD/CRPS ignores ALL rules of logic...it's quite the rebel...so there's no telling if, when, where, or how bad lesions/sores might surface. Personally, I didn't really think about them until I saw that the backs of my legs were covered in scars from them. I know that's not much help, but that's my experience. I've always been a picker, so now I'm having to retrain myself not to pick unless I'm absolutely positively sure that thing is a giant disgusting pimple!!

I do hope you don't have to experience the lesions. And hopefully more people with more experience of knowing what to look for will respond
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jpcrps (11-23-2012)
Old 11-27-2012, 07:51 PM #3
Indea88 Indea88 is offline
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Quote:
Originally Posted by PhyllisJ View Post
Welcome, Jenny, but so sorry you're having to join our club. This stuff is not fun, but you came to the right place! RSD/CRPS ignores ALL rules of logic...it's quite the rebel...so there's no telling if, when, where, or how bad lesions/sores might surface. Personally, I didn't really think about them until I saw that the backs of my legs were covered in scars from them. I know that's not much help, but that's my experience. I've always been a picker, so now I'm having to retrain myself not to pick unless I'm absolutely positively sure that thing is a giant disgusting pimple!!

I do hope you don't have to experience the lesions. And hopefully more people with more experience of knowing what to look for will respond
I've had this animal/RSD/Bracial, Cervical Plexopathy/T1 C1 fiber disease for 18 years. Started as a pain in my upper back from a serious MVA. I have maintained this disease which has been "hidden" for 18 years, but it was 2 years ago when it began as as a few itchy bumps on the inside of my left ring finger. 2 years later sores developed which look like cigarette burns. Itch tremendously initially, swelling, redness, pain and these sores from mid forearm to tips of my fingers. Had them. a few on my right leg but there they have resolved. My hands feel cramped, painful, swollen. Unable to make a fist. I hate this disease. Everyone thinks I'm contagious, I'm not but people wouldn't understand so I reserve any explanation. Using Benadryl spray/cortisone cream and emoillents. Did I say I hate this beast of a disease....!
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