Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-11-2012, 04:16 AM #1
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Has anyone heard of anyone with RSD/CRPS having narcoleptic type events.*
I sit on couch to watch tv read ask questions on here and suddenly without warning im asleep. or should i say awakening and A few minutes or many minutes later i awake. its not like falling asleep. But i dream and it feels like hours have gine by.. im awake one second and wham asleep the next. i dont feel it coming on. im not tired. Im a bit afraid to ask Dr. about it. i think im going nuts. have had RSD for 12 yrs. this is new. yes im tiered alot from meds and stuff but this is different. anyone else experience this one????
Did a quick search on google and im textbook narcolepsy without cataplexy. im so freaked out by this one.
theres a questionaire i took and i scored very high for it. reading the description on wikipedia was like me writing it myself. please. anyone else have this. let me know.

ty Susan
ps. new to this site. never really joined any forums. my dr said stay away so i dont read things into my disease but this one i had to. esp after i fell asleep for a few min while cooking tonight and started a small fire.
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Old 11-11-2012, 04:32 AM #2
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answers are below your post here

http://neurotalk.psychcentral.com/thread179168.html
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Old 11-11-2012, 04:48 AM #3
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Quote:
Originally Posted by isuern1 View Post
Has anyone heard of anyone with RSD/CRPS having narcoleptic type events.*
I sit on couch to watch tv read ask questions on here and suddenly without warning im asleep. or should i say awakening and A few minutes or many minutes later i awake. its not like falling asleep. But i dream and it feels like hours have gine by.. im awake one second and wham asleep the next. i dont feel it coming on. im not tired. Im a bit afraid to ask Dr. about it. i think im going nuts. have had RSD for 12 yrs. this is new. yes im tiered alot from meds and stuff but this is different. anyone else experience this one????
Did a quick search on google and im textbook narcolepsy without cataplexy. im so freaked out by this one.
theres a questionaire i took and i scored very high for it. reading the description on wikipedia was like me writing it myself. please. anyone else have this. let me know.

ty Susan
ps. new to this site. never really joined any forums. my dr said stay away so i dont read things into my disease but this one i had to. esp after i fell asleep for a few min while cooking tonight and started a small fire.
Ohhh yeah.. it happens. when I sit on the couch to pt my legs up.. im out for cple of minutes then poof awake like nothing happened. but worse is when my eyes shut for no reason and im wide awake.. I rty to open my eyes but it is like prying open an oyster shell with tooth picks.. or better than that. snoring when you are awake.. eyes open completely aware of your surroundings.. even participating..its weird but its life now i guess
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Old 11-11-2012, 10:54 AM #4
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I had issues like this shortly after my spread...my doctor thinks it was caused by the valium another doctor had put me on. I would literally fall asleep while eating a sandwich, half way through chewing, and then wake up and finish chewing my food. Very dangerous. It stopped shortly after I stopped taking the valium.
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