So here is how the Lido Infusion went Friday: I was pain free during the infusion and recovery - a few hours. I was somewhat better for about 30 hours and then pain and symptoms began to get back to as before. They did not follow with any new meds so I do not know if that would have helped. I am discouraged. The doc said to call him in one week with an update.
What should I try next? I am a bit afraid to try ketamine. Should I try HBOT?

This is truly a horrible condition that no human should have to endure.

Sallysue,

Sorry that you did not have long term results from your lidocaine injection. Can they do more?

Please research both ketamine and HBOT before doing either one.

Sorry to hear the infusion wasn't long lasting, it did not provide a last effect for me either.I have some reservations about ketamine, I know it has been successful for some people but have felt it is too risky to try. HBOT is definitely a safe treatment and painless treatment as long as you follow simple rules such as no nail polish, makeup, hair spray etc. I have had around 60 "dives"HBOT treatments and did have lasting reduced pain and swelling. It didn't completely take it away but it did help some and the after each treatment I was so full of energy. I like to think of the treatments as a battery recharger. Let me know if you have any other questions. Good luck!

The doc wants to and has scheduled a 2nd Lidocaine Infusion for mid Dec. I assume since I had some positive effects they are trying to see if another infusion can help positive effects to last longer...?
I have an appt with the main PM doc next week and will ask him his thoughts on HBOT. I am unsure about trying a ketaime infusion. I just stopped taking 'ketamine oral' as I was wondering if it was affecting my bladder. I have had some unusual, hard to describe, bladder sensations lately. Has anyone else had any similar odd bladder sensation experience with 'ketamine oral'? Thank you very much for all your comments.

Hi Sallysue,

I also have CRPS due to a extended venipuncture procedure done 10/25/2012. I'm not sure that I can help you as this diagnosis is really new and I'm lost in all of this. My PM doc wants me to have Sympathetic Blockage (Phentolamine) done but I'm having trouble finding somewhere that will do it. Its starting to spread to my left clavicle and I'm also starting to feel pain in my right shoulder now as well .... I agree with your comment about how no human should have to suffer with this. I don't know what to do! I'm in Spokane Washington. I have been seeing a PM Physiatrist. His office is closed today and tomorrow. The doctor he referred me to doesn't do the treatment he thinks I should have and he wanted me to have it today if at all possible......pain is getting worse I'm only on Percocet right now.........I feel like breaking down and crying

Thank you Emily. My thoughts are with you. I am in agony today but this info from you was helpful ...'Sympathetic Blockage (Phentolamine)'. A prior PM doc had suggested that I should consider an infusion of lidocaine ... ketamine ... and phentolamine ... meds each pushed separately. I did not know what that last med was for ... now I know more about phentolamine.

We all need to help bring more awareness to this terrible crps/rsd pain condition so researchers will work towards a cure.
Thanks again.