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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Hi everyone sorry I have not written in so long
As some of u know I was becoming more and more depresses . Three years after the coma treatment in Germany failed, not to mention I almost died, I tried every clinical trial there was my last med routine was 3 OPANA a day 40mg 5 OxyCodone Baclofen Etcetera some 12 additional scripts. I almost gave up last December almost a year ago to today I just did not want to be on this planet anymore Because of losing my house and spouse (kinda of rhymes!like a country western) I decided to take a good look at the pump, Medtronic infusion pump not Stimulator Against all my doctors wishes including a big no from Philadelphia I went ahead and on January 5 had the surgery It's a long story between then and now however I have gone from 7 days a week at level 8- level 10 pain for at least 15 hours per day ; all the way down to a pain level of "0" for almost all day. If I overdo and flare it never goes all the way up, usually not higher than a 5. If I rest it comes down easily, For those suffering at the level I was with full body at those levels of both pain and those amounts of narcotics I want u to know u do have an option. I'll share more soon. God Bless cz |
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