Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-12-2012, 10:09 AM #1
CZZ74 CZZ74 is offline
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Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default After 10 years many days pain free

Hi everyone sorry I have not written in so long
As some of u know I was becoming more and more depresses . Three years after the coma treatment in Germany failed, not to mention I almost died,
I tried every clinical trial there was my last med routine was
3 OPANA a day 40mg
5 OxyCodone
Baclofen
Etcetera some 12 additional scripts.
I almost gave up last December almost a year ago to today I just did not want to be on this planet anymore
Because of losing my house and spouse (kinda of rhymes!like a country western)
I decided to take a good look at the pump, Medtronic infusion pump not Stimulator
Against all my doctors wishes including a big no from Philadelphia I went ahead and on January 5 had the surgery
It's a long story between then and now however I have gone from 7 days a week at level 8- level 10 pain for at least 15 hours per day ; all the way down to a pain level of "0" for almost all day.
If I overdo and flare it never goes all the way up, usually not higher than a 5.
If I rest it comes down easily,
For those suffering at the level I was with full body at those levels of both pain and those amounts of narcotics I want u to know u do have an option.
I'll share more soon. God Bless cz
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birchlake (11-12-2012), finz (11-13-2012), reluctant@thetable (11-12-2012), SandyRI (11-18-2012)
 


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