Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-27-2012, 08:11 PM #1
Indea88 Indea88 is offline
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Default R U kidding me

Called neurology the weekend of the Hurricaine here in the northeast, I was out of my Soma, which I take for RSD. Plexopathy, Cfiber disease. This is the only drug that helps some. I was prescribed this medication 18 years ago by my neurologist. The on call neurologist called in the precription. I now call for a refill. Nurse in the office calls to say "you better find a family Dr. to start precribing this, we have to fill out double the paperwork and their are strict rules now "he won't be able to precribed this forever! (I have an appoitment in Jan) Takes a year to get a follow up appointment. "Okay I;ll call it in this time""but you better find someone else soon. R they kidding me, my Dr.(neuro prescribed this, not the GP. "Well things are changing with the new laws, protocall etc...SO frustrated, want to scream. The only med I'm on and I'm made to feel like this, R THEY KIDDING ME, what about the patient
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Old 11-28-2012, 10:49 AM #2
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Controlled substance are going to have to have a paper script in order to fill. People will be seeing this more and more. Some will be faster at getting on board, but for the most part, it will be standard in the future.
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Old 11-29-2012, 12:44 AM #3
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Quote:
Originally Posted by Indea88 View Post
R THEY KIDDING ME, what about the patient
It is absolutely ridiculous! I understand that there is a prescription drug problem in the US, but good God, what about those of us who NEED / REQUIRE these meds? My mother died of cancer and yet, I have a condition that is more painful and someone with cancer gets carte blanche? Really?! To say I don’t get it would be an understatement. The war on the sick needs to end. Perhaps the war on drugs needs to end since it appears unwinnable. Did I mention I think this is ridiculous?! So sorry for you, and I feel your pain every single time I need meds too.
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Old 11-29-2012, 08:17 AM #4
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I would definitely talk to your neuro about this. Sometimes the nursing staff is quite abrupt and not as understanding as the doctor who normally treats you. Perhaps he will give her a good talking to!!!

I have a lot of scripts I have to pick up in person and deliver to pharmacy along with ID to obtain them. Doc usually schedules appointments to coincide with when I will need the script.

Tell him that she told you that he would not be able to provide this care for you and you should look for a primary to take care of you. i'll be he will be angry with her, just as you are.

Love,
jenny
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Old 11-30-2012, 10:20 PM #5
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I just received a letter from Dr. in the mail today asking me to find a GP who will manage my soma presription. The only med I take for this. The letter states that I am not seen enough for med to be managed. I have seen Dr for over 17 years. Takes a year to get a follow up appointment.He wanted me to have ketamine during my last visit. I chose not to, just my personal preference, but now this....
I'm a nurse in the NP program, due to graduate soon, I was going to NOT be licensed for controlled prescribing. I think I just changed my focus wanting to help those like myself in true need.....sad day, sad changes in health care, or lack of
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