Jeeze. I had no idea.

I don't get a lot of color change and haven't noticed any cyanosis. I do get the mottling on my palms and several colors on the originally affected hand but it's usually no a dramatic change. It isn't always indicative of pain but there is a lot of correlation.

Oddly enough I get what appear to be copper deposits just under the surface of the skin once in a while. These tend to be on the fingers of the affected hand, especially behind the second joint of the index finger. Wilson's disease has apparently been ruled out.

I've been trying to whip my nails into some kind of shape and the copper is most likely to form after a little soak in hydrogen peroxide to remove dead tissue. This copper appears as bluish threads but if they are dug out and viewed directly they are very distinct and brilliant aquamarine. Most are horseshoe shaped.

I'm still toying with the idea that there are two infections at play with one being a spirochete and the other a quorum sensing bacterium.

From a distance the skin affected by the apparent copper deposits appears blue. This is, no doubt, an entirely different phenonenon than what others are seeing.

Good evening to all:

I have attached some pics that show severe edema of my rt.foot, where the RSD began. Both feet are deformed slightly and I am working with PT on that. It also shows cyanosis in a few, where my foot looks bluish and has some shininess to it. There are also a couple that show severe redness and inflammation.

These are just a few pics that I thought you might be interested in. My feet used to be very thin, bony, and cute. Not anymore! My RSD is now bilateral and up past my knees on both sides (almost to my mid thigh).

Heather

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I know the pics aren't that great, but you can get a general idea about some of the RSD terms like cyanosis, edema, etc.

Heather

Thank you Heather,

Those are very interesting, and also show something else that I have: extremely prominent veins, even more than yours, though I have no edema at present - anyone else have that? (Hey, nice gold nail varnish )
all the best.

Hi Ima,

I appreciate your posts. For the root of my problem I am certainly keeping a open mind. I am just thankful with the prior eye problem I had they didn't say it was just RSD related.

Here is a link on garlic and bacteria.
http://mic.sgmjournals.org/cgi/reprint/151/12/3873.pdf
Here's a better one.
http://www.garlic-central.com/antibiotic.html
Someone suggested I try to made onion and garlic soup. Of course I am not fond of either. I mean it is really horrid, but I am giving it a go.

I enjoy reading your posts. Hugs, Roz xxxx

Thanks for the links.

I took garlic at first and seemed to get a little benefit. Curiously I never ate garlic before I got sick but now use it in many many dishes.

This is a pic of the other foot, you can see a lot more veins. This is how they look during a flare-up...

Heather

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I have had the same experience! I have found that the color change/ temperature changes change all of the time. Like you said, I also found that wiggling my fingers, using them, moving my foot, etc... would help with the color changes (I believe because the blood is flowing better by moving it), and would sometimes help with the temperature changes.

Froggsy, what does pressure bandaging do?

Oh... and the cyanosis comes and goes with me. Some days it appears I have "cold" RSD and other days it appears I have "hot" RSD... or it will change within hours!

When my feet swell my veins get extremely prominent. And my hands have done the same thing as well in the past.