Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-05-2012, 06:16 PM #1
CRPSsongbird CRPSsongbird is offline
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Default I have learned to love....

LIDOCAINE PATCHES.....just had a flare up and went to PM doc...he put 2 on me. One under my arm and the other over my bicep(believed injury site). Sigh..........finally a little relief!
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Old 12-05-2012, 06:17 PM #2
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Thank goodness... I am glad you finally got them.
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Old 12-05-2012, 06:26 PM #3
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Quote:
Originally Posted by EMILY ANDERSON View Post
LIDOCAINE PATCHES.....just had a flare up and went to PM doc...he put 2 on me. One under my arm and the other over my bicep(believed injury site). Sigh..........finally a little relief!
Glad you are able to wear them, I have them but I often can't wear them because it just hurts to even have the patch on me because of the hypersensitivity. Was at first this a problem for you?
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Old 12-05-2012, 06:34 PM #4
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Originally Posted by musicgirl757 View Post
Glad you are able to wear them, I have them but I often can't wear them because it just hurts to even have the patch on me because of the hypersensitivity. Was at first this a problem for you?
I'm fairly new in "acute" stage of CRPS, and haveN'T hit the extreme hypersensitivity yet. Thankfully. I don't know what I would do if this hadn't worked. I sorry to hear that for you. Correct me if I'm wrong though aren't there lotions with Lidocaine in them that you could gently rub in? I hope you get relief soon!

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Old 12-05-2012, 07:06 PM #5
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Lightbulb

Sometimes, and I mean sometimes....

The lidoderms will cause a remission. This is only if the nerve is just "overfiring" for some strange reason. You need to use them for about 2 weeks or more daily, to see if this happens.

If it doesn't work it doesn't. But if it does, you are very lucky.
It happened to me with MP... so it is a possibility for you.
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Old 12-05-2012, 07:12 PM #6
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I believe that lidocaine, (and other meds) are available as gels that are 'formulated'. Much, much stronger than something like menthol ice. And, I've NEVER had an issue with contact pain with a formulated med.... You might want to check that out. You may or may not have a formulating pharmacy near you, but your dr will know where there's one that ships.

pete
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Old 12-05-2012, 07:16 PM #7
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Default Hi emily and Mrs.D

My doctor gladly gave me lidocain patches today. I had been told on NT. that medicare and medicaid would cover them. However I was denied. Who has what medicare part D carrier. I have humanna and am sick of writing begging letters. I need some help to find new insurance. I called AARD, and united way with no better results. Can you give me directions? Why would insurance company allow morphine but not this non-opiate patch.? Earlier I was denied medication to breathe for asthma. This is making me very very sad. ginnie
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Old 12-05-2012, 07:33 PM #8
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With the new regulations Obama put on insurance comps I though they couldn't do that anymore. Well I'm sorry to hear that! I'm trying to gt the
"claims"through hospital that caused this to approve a regular prescription for me. It's almost worse than the insurance........like trying to squeeze blood from a turnip. My PM gave me 2 samples to put on today. I guess they run about $12.00 for 1 patch!! So if I needed 2 a day for a month that about 720.00 ...more than my rent! And since i don't have insur that won't happen lol
Not sure what you can do other than maybe write a letter again
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Old 12-06-2012, 08:59 AM #9
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Quote:
Originally Posted by EMILY ANDERSON View Post
With the new regulations Obama put on insurance comps I though they couldn't do that anymore. Well I'm sorry to hear that! I'm trying to gt the
"claims"through hospital that caused this to approve a regular prescription for me. It's almost worse than the insurance........like trying to squeeze blood from a turnip. My PM gave me 2 samples to put on today. I guess they run about $12.00 for 1 patch!! So if I needed 2 a day for a month that about 720.00 ...more than my rent! And since i don't have insur that won't happen lol
Not sure what you can do other than maybe write a letter again
Another thing to consider, depending on how large of an area you need to cover with the patches, is cutting them in half and using the two halves instead of two full patches in the areas you need to cover. I use mine on my ankle and wrists most of the time and those are small areas so using a half patch on each is usually fine. When I need them on my back then I usually use a whole patch. Just an idea if you need to cut costs or get more mileage out of a box of them.
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Old 12-06-2012, 05:26 PM #10
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Default oh the pain......

I feel like screaming.... pain back meaner than ever Lidocaine finally fully wore off.... PM is out of town until Monday. PCP can't see me for 2 weeks.....Ans Specialist is gone till monday as well....looks like its back to the ER........I am crying from the pain.....or trying not to....
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