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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Senior Member
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What I think you should do........
~Print out some articles on RSD showing that it can spread. ~Take them to your next appt and show them to your new PA ~Discuss that some of her past statements have led you to suspect she is not up to date with her RSD knowledge, so you want to know how you can guarantee an appropriate/aggressive plan of care to manage your symptoms. Perhaps she could suggest a clinician in that practice who is more knowledgable able RSD. That plan is easier said than done. I worked as an RN and spent 20+ years advocating for my patients. I find it difficult to do that for myself. Too many years feeling belittled by health care 'professionals' who told me RSD was all in my head, that I didn't need any meds (I'm not referring just to the narcotics which I now use and find helpful, but also the Neurontin, Cymbalta, Nortriptyline, Feldene, and steroid injections which have helped me so much with my pain management.), that I just needed more exercise (weight lifting, which made my symptoms worse), etc, etc I believe many of us could benefit from having an advocate there with us to help us stick up for ourselves. Good luck, Tedd.
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"Thanks for this!" says: | Tedd (12-19-2012) |
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