Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 04-24-2007, 12:19 AM #21
buckwheat
Guest
 
Posts: n/a
buckwheat
Guest
 
Posts: n/a
Default

Dear Heather,

A high risk OB-GYN will know exactly what effects any med. would have on a child. I had a high risk pregancy with my youngest child. I did not have RSD at the time, but a rough pregancy.

The high risk MD OB was so very kind and caring. They deal alot with a mom with medical problems as well.

I hope your pain levels go down soon, try to relax hon. Were here for you. Love, Roz xxx
  Reply With QuoteReply With Quote

advertisement
Old 04-24-2007, 01:22 AM #22
allentgamer's Avatar
allentgamer allentgamer is offline
Senior Member
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
allentgamer allentgamer is offline
Senior Member
allentgamer's Avatar
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
Default chiming in

Hi Heather!

Congrats on the pregnancy!!!
I should be a grandpa again either tonight or tomorrow, cant hardly wait lol.

First I want to say everyone has given you some very good advice, and I proudly vouch for them

Now, on Jan 1st of this year I lost my doctor, and that meant no more pain meds. I went cold turkey off of all my meds, the very same ones your talking about except the patch. Well during the withdrawals I read everything I could find, joined 4 forums on addiction, and emailed my old doctor friend about 40 11 times.

Dont just stop the meds, it can stress the baby worse than staying on the meds full term, and that is not good. It is better to taper down on the meds. Dont worry about the bad scenarios. Vic is dead on in his advice there, we were made, even in the first stages of life to be able to handle some diversity. Dont panic, just start tapering down a little bit every 3 days or so, and go to any doctor soon as you can get in.

I know everything will be fine, really.
__________________

.
Gone Squatchin
allentgamer is offline   Reply With QuoteReply With Quote
Old 04-24-2007, 02:54 AM #23
nopainever's Avatar
nopainever nopainever is offline
Member
 
Join Date: Apr 2007
Location: Orange County, CA
Posts: 157
15 yr Member
nopainever nopainever is offline
Member
nopainever's Avatar
 
Join Date: Apr 2007
Location: Orange County, CA
Posts: 157
15 yr Member
Default

Quote:
Originally Posted by allentgamer View Post
Hi Heather!

Congrats on the pregnancy!!!
I should be a grandpa again either tonight or tomorrow, cant hardly wait lol.

First I want to say everyone has given you some very good advice, and I proudly vouch for them

Now, on Jan 1st of this year I lost my doctor, and that meant no more pain meds. I went cold turkey off of all my meds, the very same ones your talking about except the patch. Well during the withdrawals I read everything I could find, joined 4 forums on addiction, and emailed my old doctor friend about 40 11 times.

Dont just stop the meds, it can stress the baby worse than staying on the meds full term, and that is not good. It is better to taper down on the meds. Dont worry about the bad scenarios. Vic is dead on in his advice there, we were made, even in the first stages of life to be able to handle some diversity. Dont panic, just start tapering down a little bit every 3 days or so, and go to any doctor soon as you can get in.

I know everything will be fine, really.
Thanks Allen,

I have been resting a lot of reading these blogs in these forums. I am o lucky to have found you guys. Thanks for the advice! One question, why did you detox?

Heather
nopainever is offline   Reply With QuoteReply With Quote
Old 04-24-2007, 08:50 AM #24
dolphin dolphin is offline
Junior Member
 
Join Date: Sep 2006
Location: the end of the rainbow...living in the pot of gold
Posts: 85
15 yr Member
dolphin dolphin is offline
Junior Member
 
Join Date: Sep 2006
Location: the end of the rainbow...living in the pot of gold
Posts: 85
15 yr Member
Default

in reply to your question, yes all my girls turned out perfect (well spoiled rotten, full of energy and getting on your last nerve perfect). My pain doc and GYN work well together with tapering off meds, the narcotics and Neurontin were a rapid taper, so I did have pain for approx. 3 weeks, but when you have a baby to look forward too, it doesn't seem so bad. Right after each the delivery (within 12 hrs) I was back on Duragesic 75mcg, Methadone 40mg 2 times a day, Neurontin 800mg 5 x a day, Skelaxin 800mg 4 x a day, Procardia XL 30mg 2 times a day and Clonidine 0.1mg. As stated by Vicc, I noticed a major decrease in pain during my pregnacy (yeah hormones). But my husband and I feel it is not really a good idea to keep having babies. One last thing...and i'm sure the parents and grandparents here will agree, children are the best distraction you can have. Let me now if I can answer anything else for you. Good luck
dolphin is offline   Reply With QuoteReply With Quote
Old 04-24-2007, 09:34 AM #25
Vicc's Avatar
Vicc Vicc is offline
In Remembrance
 
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
15 yr Member
Vicc Vicc is offline
In Remembrance
Vicc's Avatar
 
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
15 yr Member
Default

Hi Dolphin,

As a parent and grandparent, I agree. But grandkids are definitely better. It's so much fun to give em all the coke, candy and ice cream they want, then let their parents take them home and deal with it.

I always told my kids that they weren't gonna get away with it; whatever "it" was at that particular moment. Revenge is so sweet.

Those pics of you and Kate with your babies never fail to brighten my day. I honest-to-God do have most the baby scenes from America's Funniest Home Videos recorded on my TIVO. I don't there's anyone in this country with breath still in her/his body who could NOT laugh along with those Quads who won the Grand Prize.

Sometimes when the depression really starts hurting, and when I'm sane enough to remember I have them, I play those scenes. I always laugh just as hard as the last time. I'm still depressed, but for a few minutes I can laugh anyway...Vic
__________________

The great end of life is not knowldege but action. T. H. Huxley

When in doubt, ask: What would Jimmy Buffett do?


email: :
.
Vicc is offline   Reply With QuoteReply With Quote
Old 04-24-2007, 10:24 AM #26
nopainever's Avatar
nopainever nopainever is offline
Member
 
Join Date: Apr 2007
Location: Orange County, CA
Posts: 157
15 yr Member
nopainever nopainever is offline
Member
nopainever's Avatar
 
Join Date: Apr 2007
Location: Orange County, CA
Posts: 157
15 yr Member
Default I need to converse....

Quote:
Originally Posted by dolphin View Post
in reply to your question, yes all my girls turned out perfect (well spoiled rotten, full of energy and getting on your last nerve perfect). My pain doc and GYN work well together with tapering off meds, the narcotics and Neurontin were a rapid taper, so I did have pain for approx. 3 weeks, but when you have a baby to look forward too, it doesn't seem so bad. Right after each the delivery (within 12 hrs) I was back on Duragesic 75mcg, Methadone 40mg 2 times a day, Neurontin 800mg 5 x a day, Skelaxin 800mg 4 x a day, Procardia XL 30mg 2 times a day and Clonidine 0.1mg. As stated by Vicc, I noticed a major decrease in pain during my pregnacy (yeah hormones). But my husband and I feel it is not really a good idea to keep having babies. One last thing...and i'm sure the parents and grandparents here will agree, children are the best distraction you can have. Let me now if I can answer anything else for you. Good luck
with people that have RSD and have already had children or are pregnant. Vic is right! I am so lucky that I found you guys when I did. I am addicted already. My fiance is great. He came home from work last night and was so interested in everything that all of you had to say to me and others. It gave him hope too. TRust me, I am not going anywhere. I already feel like I have a family. It's wonderful!

So, were you on ALL those meds throughout your 2nd and 3rd Trimester and tapered towards the end? I so need my meds to sleep and I am not taking anything right now except for minimal morphine sulfate and Duragesic Patches. I just hope I am doing okay.

I am so excited! I really can't wait to make it to the OB and find out that everything is okay. I do have to wait till Mon, but the plan is for my OB and PM dr's to work together. So, I will just wait and see what they say.

Thanks again,
Heather
nopainever is offline   Reply With QuoteReply With Quote
Old 04-25-2007, 09:58 AM #27
dolphin dolphin is offline
Junior Member
 
Join Date: Sep 2006
Location: the end of the rainbow...living in the pot of gold
Posts: 85
15 yr Member
dolphin dolphin is offline
Junior Member
 
Join Date: Sep 2006
Location: the end of the rainbow...living in the pot of gold
Posts: 85
15 yr Member
Default

It's important to note that my pain doctor worked very closely with my OB. With every visit the 2 of them talked regarding how to cont my care. My biggest problem (still is), I can not walk without the use of 1/2 canes, and when you gain 27 lbs, the RSDS limbs really feel the difference. I fall alot normally so it was funny to my family to watch the pregnant lady stubble like a drunk (but they never let me fall). You just need to have your OB work with your pain doctor. Keep in mind, If you have spinal blocks done the medication does not pass to the baby, but if it causes side-effects, those can effect your baby (rare, but if your blood pressure drops it can effect the baby). I would stay pregant if I could, but as I said before, my husband would leave me (ok maybe not, but 3 is enough for us)
dolphin is offline   Reply With QuoteReply With Quote
Old 04-25-2007, 01:13 PM #28
Vicc's Avatar
Vicc Vicc is offline
In Remembrance
 
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
15 yr Member
Vicc Vicc is offline
In Remembrance
Vicc's Avatar
 
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
15 yr Member
Default

Hi again,

I promised you I would view that lecture on pain and women and get back to you with what I'd learned. I did view it, but didn't get back to you the way I should have.

If I had learned anything useful, I would have posted that very night; unfortunately, all the lecturer said about pain relief during pregnancy is that some women suffering from some types of chronic pain, sometimes report a dramatic reduction in that pain during pregnancy. That's it. Period.

Still, I still should have gotten back to you sooner than this. My bad.

I gotta tell you that your reply to me made my day. By now you know that our emotions cycle a lot; your stress level has probably been back up to 8 several times.

Still, you got to breathe better for a little while. Time enough for Kate and Dolphin to arrive and give you some real and useful information. I knew they would.

You don't owe me anything for a few moments of emotional relief, but if you feel that you do, you can repay me for my invaluable help by loaning me your baby for a year or two.

We raised our first grandson for the first two years of his life, and those two years were among the best that either my wife or I can remember. Our own children had every right to be jealous. We loved them; even lived for them, but we weren't able to devote as much time to them as we could to Brennen.

I was disabled when he was born. Life was pretty boring, daytime TV being what it is, so he got 100% of us 100% of the time. .

If you decide to loan us your baby, I promise to return you a happy, healthy child...Vic
__________________

The great end of life is not knowldege but action. T. H. Huxley

When in doubt, ask: What would Jimmy Buffett do?


email: :
.

Last edited by Vicc; 04-25-2007 at 01:15 PM. Reason: I'm running out of ideas...some help please
Vicc is offline   Reply With QuoteReply With Quote
Old 04-25-2007, 03:12 PM #29
dolphin dolphin is offline
Junior Member
 
Join Date: Sep 2006
Location: the end of the rainbow...living in the pot of gold
Posts: 85
15 yr Member
dolphin dolphin is offline
Junior Member
 
Join Date: Sep 2006
Location: the end of the rainbow...living in the pot of gold
Posts: 85
15 yr Member
Default

Hey Vicc, I'm just down the road from you, I'm in joplin....I'll give you the baby anytime you want....BUT you have to take the 12 going on 21 year old also.
dolphin is offline   Reply With QuoteReply With Quote
Old 04-25-2007, 05:05 PM #30
Vicc's Avatar
Vicc Vicc is offline
In Remembrance
 
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
15 yr Member
Vicc Vicc is offline
In Remembrance
Vicc's Avatar
 
Join Date: Nov 2006
Location: SE Kansas.
Posts: 374
15 yr Member
Default

Hi Dolphin,

When I first read your offer I thought "Is she crazy?" It took only a moment to realize that you aren't, of course, you just hope we're crazy.

We raised 4 kids, from the 12 going on 21 stage all the way through, and past, the 21 going on 12 stage. Your offer sucks. Then I went back and looked at that beautiful pic.

I can always go back on Paxil...My wife TIVOs all the birthing shows on Discovery Health...The baby is only three months old...we could do it. I went in and talked to my wife.

After three hours of intense negotiation she finally put the gun down. She's in the bedroom now, crying. I know I'll have to go to sleep sometime.

I guess it's thanks, but no thanks...Vic
__________________

The great end of life is not knowldege but action. T. H. Huxley

When in doubt, ask: What would Jimmy Buffett do?


email: :
.
Vicc is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 01:58 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.